Antecedentes de la legítima en el Derecho romano

MUSIC THERAPY PROGRAMME (MMusTher)

Promoting Communication and Socialisation through Music Therapy for Children with Cerebral Palsy

INFORMATION SHEET FOR PARENTS/ GUARDIAN

Researcher: Supervisor:

Hong Ching Kho (Researcher) Associate Professor Sarah Hoskyns Music Therapy student Director of Music Therapy

Ph: 04-5660998 New Zealand School of Music

Mobile: 0212092612 PO Box 2332

[email protected] Wellington

Ph: 04-8015799 extn 6410 [email protected] Dear parent or guardian,

I am Hong Ching Kho (Coco), a second year master of music therapy student, providing music therapy services at Conductive Education in XXXXX. As part of my studies, I am involved in developing a research project about music therapy and cerebral palsy. Your child is being invited to take an indirect part in this project that will explore how music therapy can promote communication and socialisation for children with cerebral palsy. The purpose of the research is to find out whether music therapy can motivate the children with cerebral palsy at a Conductive Education Centre to be more interested in communication and to have more interaction with the others verbal and non-verbally. This project is being undertaken as part of a Master in Music Therapy under the supervision of Sarah Hoskyns, Director of Music Therapy at the New Zealand School of Music in Wellington.

From the referrals for music therapy at the centre, there are 6 potential children who are eligible for the study. However I will only need two children for the study to allow me to write an in-depth case study about the music therapy sessions of each child. If you decide that you would like your child to participate, I will arrange to have two individual music therapy sessions each week for a period of 3 months. The music therapy session will last between 20-30 minutes depending on the age and needs of your child. The music therapy session will involve playing instruments, singing, listening, turn-taking and sharing in music. Music therapy is part of the care provided at the Conductive Education Centre and will be provided at no cost.

All the sessions will be video-recorded for me to reflect on my work. Two video clips at different time points will be chosen to present to two volunteer staff participants to gain their perceptions on the work. Two standard assessments will be done for each child by Centre Staff before the music therapy session begins and after the music therapy session end to provide a baseline regarding communication and interaction with others. This will not cause any extra time or discomfort to your child because the assessments will be done individually as part of regular observation of the children at the centre. You may request a copy of the video-recording of your child on special arrangement after the study. The researcher is not responsible for the cost of the recording. Therefore an additional cost may apply if you request this.

Your child’s rights

No material, which could personally identify your child or family, will be used in any reports on this study (i.e. all names and identifying details will be changed). Neither the name of the Centre nor its’ location will be used in the thesis. However as Conductive Education is specialised and fairly rare in NZ, there us a slight risk that your child could be identified through association with this specialised service, though I will make every attempt to minimise this risk. The records will be stored in a secure room at the New Zealand School of Music for ten years from when your child turns sixteen years. Only the researcher and her supervisor will have access to the data. Your child’s name will not be used in the thesis to ensure privacy and confidentiality. A copy of the thesis will be in the libraries of Massey University and Victoria University of Wellington.

It is anticipated that your child will benefit from receiving music therapy. Studies have provided evidence that music therapy is an effective treatment especially in facilitating communications as music is a medium that involves a complex range of expressive qualities, dynamic form and dialogue, and establishes alternative communication that can help to achieve engagement, interaction and building relationships (Wigram & Gold, 2005).Music therapy is a non-threatening intervention that your child will benefit from. This research intends to explore the area of communication and socialisation more fully, as it is an important feature of the primary mission of conductive education and this could be an important contribution for music therapy in this field.

Your child’s participation is entirely voluntary (your choice). Your child does not have to be involved in this study, and if you choose not to give consent he/she will receive the standard treatment. If you do agree to let your child be involved, your child is free to withdraw from the study at any time, up until the analysis of the data, without having to give a reason. You will have up to two weeks to decide. Your child has the right to consent to participate in research when they are capable of understanding what the study involves and the risks. If your child is unable to fully understand, I will still seek to gain their assent, unless your child is unable to communicate.

The results of the research are available upon request. Please note that the results may not be ready for publication until midway through 2011. A copy of the results will be available from the researcher at the research site. If you prefer, a copy of the results can be mailed to an address supplied. The researcher will be willing to discuss outcomes relevant to you after the study.

This study has received ethical approval, following expedited review, from the Central Regional Ethics Committee, (reference number: CEN/10/EXP/039). If you have any queries or concerns regarding your child’s rights as an indirect participant in this study, you may wish to contact an independent health and disability advocate:

Free phone: 0800 555 050

Free fax: 0800 2 SUPPORT (0800 2787 7678) Email: [email protected]

Please feel free to contact the researcher or supervisor if you have any questions about this study at the above phone numbers.

Hong Ching Kho (Researcher) Researcher