Cobertura periodística del asesinato de Luis Banchero Rossi

To make sure we record your answers correctly, we would like to ask if it would be okay to audio-record your answers to the questionnaire.

You can choose to consent to the audio-recording or not and you are free to withdraw at any time by requesting that the recording be stopped. Your name (or your my child‟s name) will not be revealed to anyone and the recording will be kept confidential. Recordings are filed by Identification number only and stored in a locked cabinet. After the audio-recording has been transcribed and checked for accuracy the audio-recording will be deleted from the recorder. You can request a copy of the transcript be sent to you to allow you to check it for accuracy if you wish, just let me know if you want me to send you a copy.

Your confidentiality will be respected and the audio-recording will be for professional use only.

If NO – That‟s OK, I will do my best to write down your answers as accurately as possible as you give them.

If YES- Great!

Start the audio recording State the Identification Number, and the date and time of the recording.

READ verbatim:

CONSENT TO PARTICIPATE IN RESEARCH

The Title of the Study is: Factors that Influence Parents Toward Early Diagnosis of Autism Spectrum Disorder (ASD)

You are asked to participate in a study by Debra Barrie, B.A. Honours, from the Psychology Department at the University of Windsor as part of her Master‟s degree in Child Clinical Psychology.

Dr. Marcia Gragg, Ph.D., C. Psych., is supervising the study. If you have any questions or concerns, please feel free to contact Dr. Gragg at 253-3000, ext. 2227.

PURPOSE OF THE STUDY

The study will look at what helps parents get an early diagnosis of ASD for their

children. I would like to know about your first concerns about your child‟s development, what you did to get professional help and what helped you obtain a diagnosis.

PROCEDURES

If you volunteer to participate in the study, you will be asked to:

1) Complete a questionnaire by telephone. This will take approximately 30 minutes. 2) Provide a copy of your child‟s diagnostic report. A stamped, pre-addressed

envelope will be provided.

POTENTIAL RISKS

You might feel mildly uncomfortable, anxious, or upset answering the questions as you recall the experiences you had obtaining a diagnosis for your child. You can access professional help by dialling the telephone code 211 or accessing the web address for 211Ontario http://www.211ontario.ca should you require help with psycho-emotional factors as a result of participating in the research.

POTENTIAL BENEFITS TO PARTICIPANTS AND/OR TO SOCIETY You will not directly benefit from taking part in the study. You will be giving us

important information that might help us help future parents and children with ASD get early diagnoses. It is our goal that this research will be published in a scientific journal. PAYMENT FOR PARTICIPATION

To thank you for participating in this study we offer you a five-dollar Tim Horton‟s gift card. To receive the gift card, we ask that you provide your name, phone number, and the address to where you want the gift card mailed. This information will be stored in a secure location separate from the research questionnaire.

CONFIDENTIALITY

Any information gathered in connection with this study and that can identify you will remain confidential and will be disclosed only with your permission. An Identification number will be assigned to your questionnaire. A master list will be created linking your Identification number to your name to allow the researcher to locate your information should you choose to withdraw your information from the study. Your names will not appear in any reports of this study. Any forms or paperwork, such as the master list, containing your name or your my child‟s name will be kept in a secure place separate from the questionnaire. Diagnostic Reports will be shredded immediately after the diagnostic details have been verified. Any audio-recordings will be labelled with your Identification number. After the audio-recording has been transcribed and the

transcription checked for accuracy, the audio-recording will be deleted. Any identifying information contained within the transcript will be deleted and replaced with your identification number. If you would like a copy of the transcript to verify it‟s accuracy, you can request this from the researcher at (519) 973-8746 or [email protected]. The researchers will keep the data from this study locked in a secure location for 7 years after the study is completed. All data and forms will be shredded or deleted after 7 years. We may wish to use your information from this study in future research studies. Your information will still be confidential and identified only by an Identification number. PARTICIPATION AND WITHDRAWAL

You can choose whether to be in this study or not. If you volunteer to be in this study, you may withdraw at any time without consequences of any kind. You may also refuse to answer any questions you do not want to answer and remain in the study.

If you do not wish to take part in the study, simply tell the researcher you do not wish to continue. If you would like to participate, complete the questionnaire with the researcher. If after completing the questionnaire you decide to remove the information that you provided on the questionnaire from the study, please contact Debra Barrie at (519) 973- 8746 or [email protected].

FEEDBACK OF THE RESULTS OF THIS STUDY TO THE PARTICIPANTS A brief summary of the results of the research will be available by September 30, 2010 and will be posted on-line at http://www.uwindsor.ca/autism

RIGHTS OF RESEARCH PARTICIPANTS

You may withdraw your consent at any time and discontinue participation without penalty. If you have questions regarding your rights as a research participant, contact: Research Ethics Coordinator, University of Windsor, Windsor, Ontario N9B 3P4, (519- 253-3000, Ext. 3948), email: [email protected]

Do you understand the information provided for the study Factors that Influence Parents Toward Early Diagnosis of Autism Spectrum Disorder

We will send you a copy of the information I have just given you along with the Consent to Release Form and you Gift Card (if accepted). Please return the signed Consent to Release Form in the preaddressed, pre-stamped envelope we provide.

Do you have any questions?

Do you agree to participate in this study?

[start the questionnaire on the next page, reading it verbatim] (Insert paper copy of questionnaire here)

Thank you for taking part in our study.

We‟d like to offer you a $5 Tim Horton‟ gift card for participating. Where can we send the card.

We will also be sending you a copy of the Letter of Information we read to you earlier for you to keep.

As part of the study, you are asked to provide a copy of your child‟s diagnostic report. Do you have a copy you could send in a stamped, pre-addressed envelope we will send you? (If YES) Great, when you receive the gift card and Letter of Information, there will be a stamped, pre-addressed envelope enclosed as well. Just put the copy of the report in the envelope and put it in the mail. The copy of the diagnostic report will be shredded as soon as we have verified diagnostic information. Thanks so much.

(If NO) We‟ll send along a Consent to Release Information form for you to compete so we can get the diagnostic report directly from your clinician. Just complete and sign the form and return it is the stamped, pre-addressed envelope enclosed with your gift card.

Thanks for your help.

If you have any questions, please feel free to contact me/the researcher, Debra Barrie, or my/her supervisor, Dr. Marcia Gragg, Ph.D., C. Psych. Again, the contact information is in your package we will be sending to you.

Appendix N

Letter of Information for Telephone Questionnaire