Comunicación narrativa en el ámbito de salud

Aday, L. (1994). Health status of vulnerable populations. Annual Review of Public Health, 15, 487-509. doi: http://dx.doi.org/10.1146/annurev.publhealth.15.1.487

Adegbola, M.A. (2007). The relationship among spirituality, self-efficacy, and quality of life in adults with sickle cell disease. University of Texas at Arlington; PhD (169 p).

Adegbola, M. (2011). Spirituality, self-efficacy, and quality of life among adults with sickle cell disease. Southern Online Journal of Nursing Research, 11(1), (19p).

Albaugh, J.A. (2003). Spirituality and life-threatening illness: A phenomenologic study. Oncology Nursing Forum, 30, 593–598.

doi: http://dx.doi.org/10.1188/03.ONF.593-598

American Academy of Pediatrics Committee on Sports Medicine and Fitness. Medical conditions affecting sports participation (1994). Pediatrics, 94(5), 757-60.

American Nurses Association. Scope and standards of practice. Silver Spring: American Nurses Association. 2010: 23.

American Holistic Nurses Association. Holistic nursing: Scope and standards of practice. Silver Spring: American Holistic Nurses Association, American Nurses

Association. 2010:1.

American Nurses Association Code of Ethics for Nurses with Interpretive Statements. http://www.nursingworld.org/MainMenuCategories/EthicsStandards/CodeofEthic sforNurses/Code-of-Ethics.pdf (Last revised, November 15, 2010).

Ameringer, S. & Smith, W. (2011). Emerging biobehavioral factors of fatigue in sickle cell disease. Journal of Nursing Scholarship, 43(1), 22-29.

Anderson, J.T., Liu, C., Kryscio, R.J. (2008). Blood pressure response to transcendental meditation: A meta-analysis. American Journal of Hypertension, 21(3), 310-316. doi: http://dx.doi.org/10.1038/ajh.2007.65

Anie, K.A., Stepsoe, A., Ball, S., Dick, M. & Smalling, B.M. (2002). Coping and health service utilisation in a UK study of paediatric sickle cell pain. Archives of Disease in Childhood, 85 (5), 325-329. doi: http://dx.doi.org/10.1136/adc.86.5.325

Astin, A.W., Astin, H.S., Lindholm, J.A., Bryant, A.N., Szelenyi, K., & Calderone, S. (2005). The spiritual life of college students: A national study of college students’ search for meaning and purpose. Los Angeles: Higher Education Research

Institute, UCLA.

Bachman, J.G., Johnson, L.D., & O’Malley, P.M. (2010). Monitoring the future: Questionnaire responses from the nation’s high school seniors. Ann Arbor, MI: Institute for Social Research, 386 pp.

Barbarin, O. (1994). Risk and resilience in adjustment to sickle cell disease: integrating focus groups, case reviews, and quantitative methods. Journal of Health Social Policy, 5, 97-121. doi: http://dx.doi.org/10.1300/J045v05n03_07

Barden, E. M., Zemel, B. S., Kawchak, D. A., Goran, M. I., Ohene-Frempong, K., & Stallings, V. A. (2000). Total and resting energy expenditure in children with sickle cell disease. Journal of Pediatrics, 136, 73–79.

doi: http://dx.doi.org/10.1016/S0022-3476(00)90053-2

Barnes, V.A., Treiber, F., & Johnson, M.H. (2004). Impact of transcendental meditation on ambulatory blood pressure in African-American adolescents. American Journal of Hypertension, 17, 366-369.

doi: http://dx.doi.org/10.1016/j.amjhyper.2003.12.008

Bediako, S.M., Lattimer, L., Haywood, C., Jr., Ratanawongsa, N., Lanzkron, S., & Beach, M. C. (2011). Religious coping and hospital admissions among adults with sickle cell disease. Journal of Behavioral Medicine, 34(2), 120-127.

doi: http://dx.doi.org/10.1007/s10865-010-9290-8

Benner-Carson, V. & Koenig, H.G. (2004). Spiritual caregiving: Healthcare as a ministry. Philadelphia: Templeton Foundation Press.

Bennett, E. (2011). Understanding growth failure on children with homyzygous sickle- cell disease. Journal of Pediatric Oncology Nursing, 28(2), 67-74.

doi: http://dx.doi.org/10.1177/1043454210382421

Benore, E., Pargament, K.I., & Pendleton, S. (2008). An initial examination of religious coping in children with asthma. The International Journal for the Psychology of Religion, 18, 267-290. doi: http://dx.doi.org/10.1080/10508610802229197

Benson, P. L., & Roehlkepartain, E. C. (2008). Spiritual development: A missing priority in youth development. New Directions for Youth Development, 118, 13-28.

doi: http://dx.doi.org/10.1002/yd.253

Benson, P. L., Roehlkepartain, E. C., & Rude, S. P. (2003). Spiritual development in childhood and adolescence: Toward a field of inquiry. Applied Developmental Science, 7(3), 204-212. doi: http://dx.doi.org/10.1207/S1532480XADS0703_12

Berges, I.M., Kuo, Y.F., & Markides, K.S. (2007). Attendance at religious services and physical functioning after stroke among older Mexican Americans. Experimental Aging Research, 33, 1-11.

doi: http://dx.doi.org/10.1080/03610730601005893

Berntson, G.G., Norman, G.J., Hawkley, L.C., & Cacioppo, J.T. (2008). Spirituality and autonomic cardiac control. Annals of Behavioral Medicine, 35(2), 198-208. doi: http://dx.doi.org/10.1007/s12160-008-9027-x

Black, D.S., Milam, J. & Sussman, S. (2009). Sitting-meditation interventions among youth: A review of treatment efficacy. Pediatrics (124), 3, e532-541.

doi: http://dx.doi.org/10.1542/peds.2008-3434

Black, P. H. (2003). The inflammatory response is an integral part of the stress response: implications for atherosclerosis, insulin resistance, type II diabetes and metabolic syndrome X. Brain, Behavior, and Immunology, 17, 350–364.

doi: http://dx.doi.org/10.1016/s0889-1591(03)00048-5

Boswell, C., Cannon, S.B., & Miller, J. (2013). Student’s perceptions of holistic care. Nursing Education Perspectives, 34(5), 329-333.

Boyes, S. (2006). Individual art therapy with resistant adolescents. In S.L. Brooke (Ed.), Creative arts therapies manual (pp. 40-46). Springfield, IL: Charles C. Thomas.

Bridges, K.R. & Pearson, H.A. (2008). Sickle Cell Disease. Anemias and other red cell disorders. New York: McGraw-Hill.

Bull, A. & Gilles, M. (2007). Spiritual needs of children with complex healthcare needs in hospital. Pediatric Nursing, 19(9), 34-38.

doi: http://dx.doi.org/10.7748/paed2007.11.19.9.34.c6283

Burdette, A.M. & Hill, T.D. (2009). Religious involvement and transitions into adolescent sexual activities. Sociology of Religion, 70 (1), 28-48.

doi: http://dx.doi.org/10.1093/socrel/srp011

Burns, V. E., Drayson, M., Ring, C. & Carroll, D. (2002). Perceived stress and

psychological well-being are associated with antibody status after meningitis C conjugate vaccination. Psychosomatic Medicine, 64, 963–970.

doi: http://dx.doi.org/10.1097/01.psy.0000038936.67401.28

Cacioppo, J.T., Hawkley, L.C, Rickett, E.M., & Masi, C.M., (2005). Sociality,

Spirituality, and Meaning Making: Chicago Health, Aging, and Social Relations Study. Review of General Psychology, 9 (2), 143-155.

doi: http://dx.doi.org/10.1037/1089-2680.9.2.143

Cavendish, R., Luise, B.K., Russo, D., Mitzeliotis, C., Bauer, M., McPartlan Bajo, M.A., Calvino, C., Horne, K., & Medefindt J. (2004). Spiritual perspectives of nurses in the United States relevant for education and practice. Western Journal of Nursing Research, 26 (2), 196-212.

doi: http://dx.doi.org/10.1177/0193945903260815

Cepeda, M.L., Allen, F.H., Cepeda, N.J. & Yang, Y.M. (2000). Physical growth, sexual maturation, body image and sickle cell disease. Journal of the National Medical Association, 92(1), 10-14.

Children’s Defense Fund (2011). The State of America’s Children. Retrieved February 29, 2012 from http://www.childrensdefense.org/child-research-data-

Children’s Defense Fund (2008). Retrieved April 1, 2010 from

http://www.childrensdefense.org/child-research-data-publications/data/state-of- americas-children-2008-report.html

Children’s Memorial Hospital. Retrieved April, 2011 from http://www.childrensmemorial.org

Claster, S. & Vichinsky, E.P. (2003). Managing sickle cell disease. British Medical Journal, 15 (327), 1151-1155.

doi: http://dx.doi.org/10.1136/bmj.327.7424.1151

Colleen, D. & Barrere, C. (2009). The experience of environmental meditation in patients with cardiovascular disease. Holistic Nursing Practice, 23(6), 361-369.

doi: http://dx.doi.org/10.1097/hnp.0b013e3181bf381c

Compas, B.E., Jaser, S.S., Dunn, M.J., & Rodriguez, E.M. (2012). Coping with chronic illness in childhood and adolescence. Annual Review of Clinical Psychology, 8, 455-480.

doi: http://dx.doi.org/10.1146/annurev-clinpsy-032511-143108

Cone, P.H. & Giske, T. (2013). Teaching spiritual care--a grounded theory study among undergraduate nursing educators. Journal of Clinical Nursing, (13-14), 1951- 1960.

doi: http://dx.doi.org/10.1111/j.1365-2702.2012.04203.x

Conran, N. & Costa, F. (2009). Hemoglobin disorders and endothelial cell interactions. Clinical Biochemistry, 42, 1824-1838.

doi: http://dx.doi.org/10.1016/j.clinbiochem.2009.06.024

Cooper-Effa, M., Blount, W., Kaslow, N., Rothenberg, R., & Eckman, J. (2001). Role of spirituality in patients with sickle cell disease. Journal of the American Board of Family Practice, 14 (2), 116-122.

Cotton, S., Grossoehme, D.H., Bignall, W.R. & Weekes-Canu, J.C., 2013. Should my provider pray with me? Perspectives of urban adolescents with asthma on

addressing religious and spiritual issues in hypothetical clinical situations. Journal of Religion and Health.

Cotton, S., Grossoehme, D., & McGrady, M.E. (2012). Religious coping and the use of prayer in children with sickle cell disease. Pediatric Blood Cancer, 58 (2), 244- 249.

doi: http://dx.doi.org/10.1002/pbc.23038

Cotton, S., Grossoehme, D., Rosenthal, S.L., McGrath, M.E., Roberts, Y.H., Hines, J., Yi, M.S. & Tsevat, J. (2009). Religious/Spiritual coping in adolescents with sickle cell disease. Journal of Pediatric Hematology Oncology, 31 (5), 313-318.

doi: http://dx.doi.org/10.1097/mph.0b013e31819e40e3

Cotton, S., Kudel, I., Roberts, Y.H., Palleria, H., Tsevat, J., Succop, P., & Yi, M.S. (2009). Spiritual well-being and mental health outcomes in adolescents with or without inflammatory bowel disease. The Journal of Adolescent Health, 44(5), 486-492.

doi: http://dx.doi.org/10.1016/j.jadohealth.2008.09.013

Cotton, S., Puchalski, C.M, Sherman, S.N., Mrus, J.M., Peterman, A.H., Feinberg, J., Pargament, K. I., Justice, A.C., Leonard, A.C., & Tsevat, J. (2006). Spirituality and religion in patients with HIV/AIDS. Journal of General Internal Medicine, 21, S5-S13.

doi: doi: http://dx.doi.org/10.1111/j.1525-1497.2006.00640.x

Cotton, S., Weekes, J.C., McGrady, M.E. (2012). Spirituality and religiosity in urban adolescents with asthma. Journal of Religion and Health, 51(1), 118-31. doi: http://dx.doi.org/10.1007/s10943-010-9408-x

Cotton, S., Zebracki, K., Rosenthal, S.L., Tsevat, J. & Drotar, D. (2006).

Religion/spirituality and adolescent health outcomes: A review. Journal of Adolescent Health, 38, 472-480.Creswell, J.W. (2007). Qualitative inquiry and research design: Choosing among five approaches. Thousand Oaks, CA: SAGE. doi: http://dx.doi.org/10.1016/j.jadohealth.2005.10.005

Davis, T.L., Kerr, B.A., & Kurpius, S.E.R. (2003). Meaning, purpose, and religiosity in at-risk youth: the relationship between anxiety and spirituality. Journal of Psychology and Theology, 31(4):356–65.

DeBaun, M.R. & Telfair, J. (2012). Transition and sickle cell disease. Pediatrics, 130, 926-936.

Dedert, E.A., Studts, J.A., Weissbecker, I., Salmon, P.G., Banis, P.L., & Sephton, S.E. (2004). Religiosity may help preserve the cortisol rhythm in women with stress related illness. International Journal of Psychiatry in Medicine, 34 (1), 61-77. doi: http://dx.doi.org/10.2190/2y72-6h80-bw93-u0t6

Delaney, C. & Barrere, C. (2009). Ecospirituality: the experience of environmental meditation in patients with cardiovascular disease. Holistic Nursing Practice, 23(6):361-9.

doi: http://dx.doi.org/10.1097/hnp.0b013e3181bf381c

Dennis-Antwi, J. A., Culley, L., Hiles, D. R., & Dyson, S. M. (2011). 'I can die today, I can die tomorrow': lay perceptions of sickle cell disease in Kumasi, Ghana at a point of transition. Ethnicity & Health, 16(4/5), 465-481.

doi: http://dx.doi.org/10.1080/13557858.2010.531249

Denton, M. L., Pearce, L.D., & Smith, C. (2008). Religion and Spirituality On the Path Through Adolescence, Research Report Number 8. National Study of Youth and Religion, University of North Carolina at Chapel Hill. Retrieved November 30, 2011,

http://www.youthandreligion.org/sites/youthandreligion.org/files/imported/public ations/docs/w2_pub_report_final.pdf/

Denzin, N.K. & Lincoln, Y.S. (1998). Methods of collecting and analyzing empirical materials. In Denzin, N.K. & Lincoln, Y.S. (Eds.). Collecting and interpreting qualitative materials. Thousand Oaks, CA: SAGE.

Denzin, N.K. & Lincoln, Y.S. (2011). The discipline and practice of qualitative research. In Denzin, N.K. &Lincoln, Y.S. (Eds.), The SAGE handbook of qualitative

research. Thousand Oaks, CA: SAGE.

Dew, R.E., Daniel, S.S., Goldston, D.B. & Koenig, H.G. (2004). Religion, spirituality, and depression in adolescent psychiatric patients. The Journal of Nervous and Mental Disease, 196 (3), 247-251.

doi: http://dx.doi.org/10.1097/nmd.0b013e3181663002

Diggs, L. M. (1973). Anatomic lesions in sickle cell disease. In Abramson, H., Bertles, J.F. & Wethers, D.L. (Eds.), Sickle cell disease: Diagnosis, management, education, and research. St. Louis: C. V. Mosby.