Appendix 1 Sear ch st r at egy for gener ic and
econom ic lit er at ur e r eview s
Su Golder , I nfor m at ion Officer , Cent r e for Rev iew s and Dissem inat ion
The follow ing sear ch st r at egy w as used on Ov id MEDLI NE and t hen conv er t ed for each subsequent dat abase.
1 car egiv $. t i, ab 2 car e giv $. t i, ab. 3 car er $. t i, ab.
4 infor m al car e. t i, ab. 5 befr iending. t i, ab. 6 car et ak $. t i, ab. 7 car e t ak er $. t i, ab. 8 car e t ak ing. t i, ab. 9 childr en car ing. t i, ab.
10 ( ( par ent or par ent s or m ot her or m ot her s or fat her or fat her s) adj 2 car ing) . t i, ab.
11 ( ( sons or daught er s or fr iends) adj 2 ( car e or car ing) ) . t i, ab.
12 ( ( husband$ or w iv es or w ife or spouse$ or gr andpar ent $ or gr andchild$ or neighbour $ or neighbor $ or r elat iv es) adj 2 ( car e or car ing or suppor t or suppor t ing) ) . t i, ab.
13 fam ilies car ing. t i, ab.
14 ( fam ilies adj 2 suppor t ) . t i, ab. 15 or/ 1 –1 4
16 Car egiv er s/ 17 15 or 16 18 Respit e Car e/
19 car e at t endant $ . t i, ab.
20 ( suppor t ser v ice$ or suppor t pr ogr am $ or suppor t schem e$ o r hom e suppor t ) . t i, ab.
28 r esident ial hom e$. t i, ab. 29 r espit e. t i, ab.
30 ( day cent r e$ or day cent er $) . t i, ab. 31 cr eche$. t i, ab. or Child Day Car e Cent er s/
32 ( day car e or day car e or day pr ogr am $ or day ser v ice$ or day aw ay ) . t i, ab. 33 cr ossr oads. t i, ab.
34 ( hot el$ or out ing$ ) . t i, ab. 35 per sonal assist ant $. t i, ab. 36 leisur e.t i,ab.
37 t im e off. t i, ab. 38 v isit or $. t i, ab. 39 social club$. t i, ab. 40 fr iendship club$. t i, ab.
41 ( hom e - based or inhom e) . t i, ab.
42 ( befr iending or t em por ar y r elief) . t i, ab. 43 hom e car e. t i, ab.
44 ( h o mecar e or dom icillar y ser v ice$ or dom icillar y car e or dom iciliar y ser v ice$ or dom iciliar y car e) . t i, ab.
45 hom em ak er $. t i, ab.
46 ( hom e help$ or hom e healt hcar e or hom e healt h car e) . t i, ab. 47 ( hom e nur sing or night nur sing) . t i, ab.
48 hom e ser v ice$. t i, ab. 49 ho m e t r eat m ent $. t i, ab. 50 exp Dem ent ia/
51 ( dem ent ia or dem ent ion or am ent ia or dem ent ed or dem ent ing or confused or confusion) . t i, ab.
52 pr ion disease$. t i, ab.
53 Tr ansm issible Spongifor m Encephalopat hy . t i, ab. 54 ( senile or Wer nick e$ Encephalopat hy ) . t i, ab. 55 Bov ine Spongifor m Encephalopat hy . t i, ab. 56 Cr eut zfeldt Jak ob Disease. t i, ab.
57 Fat al Fam ilial I nsom nia. t i, ab.
58 Ger st m ann St r aussler Scheink er Sy ndr om e. t i, ab. 59 ( Scr apie or k ur u) .t i,ab.
60 Dow n Sy ndr om e/
61 dow n$ sy ndr om e$. t i, ab. 62 dow n$ disease$. t i, ab.
63 ( m ongoloid$ or m ongolian or m ongolism ) .t i,ab. 64 Alzheim er $. t i, ab.
67 Senilit y . t i, ab.
68 Hunt ingt on Chor ea. t i, ab. 69 Kluv er Bucy Sy ndr om e.t i,ab. 70 Ment al Det er ior at ion.t i,ab.
71 ( Minam at a Disease or pick $ disease) . t i, ab. 72 Neur onal Cer oid Lipofuscinosis. t i, ab. 73 ( Pr oger ia or pr ogr essiv e aphasia) . t i, ab.
74 ( Ret t Sy ndr om e or supr anuclear palsy or binw anger $ disease) . t i, ab. 75 Wer ner Sy ndr om e. t i, ab.
76 Kor sak off Sy ndr om e/ 77 k or sa k off$. t i, ab.
78 ( v cj d or cj d or bse or m ad cow disease) . t i, ab. 79 Ret t Sy ndr om e/
80 Supr anuclear Palsy , Pr ogr essiv e/ 81 Wer ner Sy ndr om e/
82 neur odegener at iv e diseases/ or ex p pr ion diseases/ 83 Wer nick e Encephalopat hy /
84 Neur onal Cer oid- Lipofuscinosis/ 85 or / 1 8– 49
86 or / 5 0– 84
87 17 and 85 and 86
Appendix 2 Dat abases sear ched
• Allied and Com plem ent ar y Medicine Dat abase ( AMED; Ov id) • Br it ish Nur sing I ndex ( BNI ; Ov id)
• Car edat a, w w w . elsc. or g. u k / bases_ floor / car edat a. h t m • CI NAHL ( Ov id)
• CENTRAL ( Cochr ane Libr ar y CD- ROM)
• Cochr ane Dat abase of Sy st em at ic Rev iew s ( CDSR; Cochr ane Libr ar y CD- ROM)
• Cur r ent Cont r olled Tr ials, ht t p: / / cont r olled- t r ials. com • Dat abase of Abst r act s of Rev iew s of Effect s ( DARE) ,
ht t p: / / nhscr d. y or k . ac. uk / w el co m e. h t m
• Dem ent ia Ser v ices Dev elopm ent Cent r e ( DSDC) dat abase ( Dem ent ia Ser v ices Dev elopm ent Cent r e, Univ er sit y of St ir ling)
• EconLit ( Silv er Plat t er ) • EMBASE ( Ov id)
• Healt h Econom ics Ev aluat ion Dat abase ( HEED; CD- ROM)
• Healt h Managem ent I nfor m at io n Consor t ium ( HMI C; HELMI S, DHdat a and t he King's Fund dat abases; Silv er Plat t er )
• Healt h Technology Assessm ent Dat abase ( HTA) h t t p: / / agat h a. y or k . ac. u k / w elcom e. h t m
• I nt er nat ional Bibliogr aphy of t he Social Sciences ( I BSS) , w w w .bids.ac.uk / ( BI DS)
• I nt er net Docum ent s in Econom ics Access Ser v ice ( I DEAS; w or k ing paper s sect ions only ) , ht t p: / / ideas. uqam . ca
• I SI Web of Science Pr oceedings ( WoSP- I STP) , ht t p: / / w os.m im as.ac.uk / ( Web of Scien ce)
• MEDLI NE ( Ov id)
• Nat ional Resear ch Regist er ( NRR; CD- ROM) • NHS Econom ic Ev aluat ion Dat abase ( NHS EED) ,
h t t p: / / n h scr d. y or k . ac. u k / w elcom e. h t m
• Planex , w w w . planex . ndir ect . co. uk / v alidat e2 . asp?ur l= / default . asp • PREMEDLI NE ( Ov id)
• Psy cI NFO, w w w . bids. ac. uk / ( BI DS)
• Social Science Cit at ion I ndex ( SSCI ) , h t t p: / / w os. m im as. ac. u k/ ( Web of Scien ce)
• Sociological Abst r act s ( Silv er Plat t er )
• Sy st em for I nfor m at ion on Gr ey Lit er at ur e in Eur ope ( SI GLE; Silv er Plat t er )
Appendix 3 Dat a- ext ract ion form
Re f e r e n ce I D
Bib liog r a p h ic d e t a ils
St u d y a im s Sum m ar ise st udy ’s aim s and pur pose ( r esear ch
quest ion) D o e s t h e st u d y h a v e a n
e con om ic com p on e n t ?
St u d y t y p olog y cod e See Table 2 . 5 I N CLU SI ON CRI TERI A
Po p u la t io n Does st udy include infor m at ion on car er s?
Yes No Uncer t ain
Does t he st udy include infor m at ion on car e - recipient s?
Yes No Uncer t ain
I n t e r v e n t ion – r e sp it e Does st udy include infor m at ion about t he effect iv eness of r espit e ser v ices designed t o allow t he car er a br eak fr om car ing
r esponsibilit y ?
Yes No Uncer t ain
I s t he r espit e int er v ent ion r epor t ed in ( a) isolat ion or ( b) par t of a pack age of ser v ices?
Yes No Uncer t ain
Fr om 1 9 8 5 on w a r d s I s t he st udy published fr om 1985 onw ar ds? Yes No Uncer t ain
Em p ir ica l r e se a r ch I s t he st udy ‘em pir ical’ r esear ch? Yes No Uncer t ain I n clu sion cr it e r ia m e t ? Yes No Uncer t ain AD D I TI O N AL I N FO RM ATI O N
Cou n t r y of st u d y
Ap p lica b le t o U K h e a lt h sy st e m ?
Yes No Uncer t ain QU ALI TY CRI TERI A
Qu e st ion ( E) I s t he r esear ch quest ion clear ?
Sa m p lin g ( E) ( Qualit at iv e) I s t he sam ple adequat e t o ex plor e t he r ange of subj ect s and set t ings, and has it been dr aw n fr om an appr opr iat e populat ion? ( Quant it at iv e) I s t he sam ple size adequat e for t he analy sis used and has it been dr aw n fr om an appr opr iat e populat ion?
D a t a colle ct ion ( E) When w as fieldw or k conduct ed?, how w as dat a collect ed?, by w hom ?, et c. Was t he dat a collect ion adequat ely descr ibed and r igor ously conduct ed t o ensur e confidence in t he findings? D a t a a n a ly sis ( E) Was t he dat a analy sis adequat ely descr ibed
and r igor ously conduct ed t o ensur e confidence in t he findings?
Re fle x iv it y ( D ) Ar e t he findings subst ant iat ed by t he dat a and has consider at ion been giv en t o any lim it at ions of t he m et hods or dat a t hat m ay hav e affect ed t he r esult s?
Ge n e r a lisa b ilit y ( D ) Do any claim s t o gener alisabilit y follow
logically , t heor et ically and st at ist ically fr om t he dat a?
Et h ica l st a n d a r d s ( D ) Have et hical issues been addr essed and confident ialit y r espect ed?
Re v ie w e r co m m e n t o n