PRESIDENCIA MUNICIPAL MANUEL DOBLADO, GTO.
EJE 5 DEMOCRACIA EFECTIVA Y POLÍTICA EXTERIOR RESPONSABLE Estatal
at a location mutually determined by the researcher and myself. I will be asked to respond to open-ended questions regarding my insight of barriers that may have occurred or were challenged during my cancer care interactions with HCPs. I understand that with my permission the interview will be audio-recorded and transcribed, and that if I do not wish to be audio-recorded during the interview, the researcher will take notes of the interview instead. I understand that no names or identifying information will be included in the final transcripts and that a code number will identify these documents, making my participation in the study confidential. I understand that I will be asked to complete an anonymous demographic
questionnaire at the end of the interview and that I will receive a $20 honorarium for my participation in this study.
Risks and Discomforts: I understand that although the researchers do not expect any direct risks from participation in the research, there is the risk that recounting cancer care interactions with HCPs may be difficult. I understand that recounting any past experiences with discrimination, homophobia, or biphobia during cancer care interactions may be uncomfortable. In order to decrease these risks, I understand that I may choose to forgo any question I do not feel comfortable discussing. I also understand that I may choose to withdraw from the study at any time, which will not affect my relationship with the Master’s student, their thesis supervisor, or York University.
Benefits of the Research and Benefits to You: I understand that although there are no direct benefits to me, the findings from this research may contribute to improvement of cancer care interactions between LB women experiencing reproductive cancers and HCPs. The dialogue created from the interviews may help to identify current barriers in care resulting from the interactions between HCPs and lesbian or bisexual women, potentially fostering further research in this area. This research may also help to yield ways in which HCPs are challenging barriers during cancer care interactions, which through
Voluntary Participation: I understand that my participation in this study is completely voluntary and I may choose to stop participating at any time. I understand that I can choose to skip any question or stop answering questions at any time.
Withdrawal from the Study: I understand that I can stop participating in the study at any time, for any reason, if I so decide. I understand that if I decide to stop participating or skip any questions, I will still be eligible to receive the honorarium. I understand that my decision to stop participating, or to refuse to answer particular questions, will not affect my relationship with the Master’s student, their thesis supervisor, or York University. I also understand that in the event I withdraw from the study, all associated data collected will be immediately destroyed wherever possible.
Confidentiality: I understand that all names, personal identifying information, and names of health care institutions that are inadvertently mentioned during the interview will be deleted or transformed during transcription in order to ensure confidentiality. I understand that the digital audio recording of the interview and the transcribed recording will be identified by a code number only, maintaining confidentiality. I understand that I have the right to review the interview transcript and to ask for the removal or change of any personal information and or any other information. I understand that all research data including digital recordings and corresponding transcripts will be stored on a password protected, encrypted USB. I understand that hard copies of the interview transcript, consent forms, and demographic questionnaires will be stored in a locked cabinet in the Researcher’s home office for 2 years. All audio recordings of interviews will be destroyed at the conclusion of the study. Electronic copies and hard copies of transcripts will be destroyed according to York policy. Confidentiality will be provided to the fullest extent possible by law.
Questions About the Research? If you have questions about the research in general or about your role in the study, please feel free to contact Laura Legere either at 647-236-4960 or [email protected] or Dr. Judith MacDonnell at 416-736-2100 Ext. 77515 or [email protected]. This research has been reviewed and approved by the Human Participants Review Sub-Committee, York University’s Faculty of Graduate Studies and conforms to the standards of the Canadian Tri-Council Research Ethics guidelines. If you have any questions about this process, or about your rights as a participant in the study, please contact Ms. Alison Collins-Mrakas, Senior Manager & Policy Advisor, Office of Research Ethics, York Research Tower, York University (telephone 416-736-5914 or e-mail [email protected]) or the Graduate Program in Nursing office at 416-736-2100 Ext. 20362.
Consent for Audio-recording
I understand that the interview will be digitally audio-recorded to facilitate the collection of information with the understanding that all information that I provide will be held in confidence and I will not be identified in the summary report or publications. I understand that if I do not want this interview to be audio-recorded that I am still eligible to participate in the study. I understand that I may withdraw this consent at any time.
Signature Date
Participant
Signature Date
Legal Rights and Signatures:
I _________________, consent to participate in Opening The Closet Door on Reproductive Cancer Care for Lesbian and Bisexual Women conducted by Laura Legere and supervised by Dr. Judith MacDonnell. I have understood the nature of this project and wish to participate. I am not waiving any of my legal rights by signing this form. My signature below indicates my consent.
Signature Date
Participant
Signature Date
Appendix G: Consent form for HCPs
Date:
Study Name: Opening The Closet Door on Reproductive Cancer Care for Lesbian and Bisexual Women: Barriers During Health Care Providers Interactions
Researchers: I understand that this research project is a Master’s thesis undertaken by Laura Legere, BN RN, MScN student and supervised by Dr. Judith MacDonnell, School of Nursing, York University. Purpose of the Research: I understand that the purpose of this Master’s thesis is to address aspects of interpersonal interactions between health care providers (HCPs) and lesbian or bisexual women with reproductive cancers that perpetuate or challenge barriers to receiving care. I understand that the goal in exploring the insights of both lesbian and bisexual (LB) women with reproductive cancers and the HCPs who work with this population is to identify barriers that may occur as a result of interpersonal
interactions, as well as ways in which these barriers are being challenged in order to help improve cancer care for this population.
What I Will Be Asked to Do in the Research: I understand that my participation in the study will involve taking part in an individual interview of approximately 60 – 90 minutes either over the phone or at a location mutually determined by the researcher and myself. I will be asked to respond to open-ended questions regarding my insight of barriers that occur or are perpetuated during interpersonal interactions with LB woman as a HCP. I understand that with my permission the interview will be audio-recorded and transcribed, and that if I do not wish to be audio-recorded during the interview, the researcher will take notes of the interview instead. I understand that no names or identifying information will be included in the final transcripts and that a code number will identify these documents, making my participation in the study confidential. I understand that I will be asked to complete an anonymous demographic
questionnaire at the end of the interview and that I will receive a $20 honorarium for my participation in this study.
Risks and Discomforts: I understand that although the researchers do not expect any direct risks from participation in the research, there is the risk that recounting cancer care interactions with LB woman may be difficult. I understand that recounting individuals’ experiences with homophobia or biphobia expressed to me may be uncomfortable. In order to decrease these risks, I understand that I may choose to forgo any question I do not feel comfortable discussing. I also understand that I may choose to withdraw from the study at any time, which will not affect my relationship with the Master’s student, their thesis supervisor, or York University.
Benefits of the Research and Benefits to You: I understand that although there are no direct benefits to me, the findings from this research may contribute to improvement of cancer care interactions between LB women experiencing reproductive cancers and HCPs. The dialogue created from the interviews may help to identify current barriers in care resulting from the interactions between HCPs and LB women, potentially fostering further research in this area. This research may also help to yield ways in which HCPs are challenging barriers during cancer care interactions, which through dissemination of findings may help to improve care for LB women.
Voluntary Participation: I understand that my participation in this study is completely voluntary and I may choose to stop participating at any time. I understand that I can choose to skip any question or stop answering questions at any time.
Withdrawal from the Study: I understand that I can stop participating in the study at any time, for any reason, if I so decide. I understand that if I decide to stop participating or skip any questions, I will still be eligible to receive the honorarium. I understand that my decision to stop participating, or to refuse to answer particular questions, will not affect my relationship with the Master’s student, their thesis supervisor, or York University. I also understand that in the event I withdraw from the study, all associated data collected will be immediately destroyed wherever possible.
Confidentiality: I understand that all names, personal identifying information, and names of health care institutions that are inadvertently mentioned during the interview will be deleted or transformed during transcription in order to ensure confidentiality. I understand that the digital audio recording of the interview and the transcribed recording will be identified by a code number only, maintaining confidentiality. I understand that I have the right to review the interview transcript and to ask for the removal or change of any personal information and or any other information. I understand that all research data including digital recordings and corresponding transcripts will be stored on a password protected, encrypted USB. I understand that hard copies of the interview transcript, consent forms, and demographic questionnaires will be stored in a locked cabinet in the Researcher’s home office for 2 years. All audio recordings of interviews will be destroyed at the conclusion of the study. Electronic copies and hard copies of transcripts will be destroyed according to York policy. Confidentiality will be provided to the fullest extent possible by law.
Questions About the Research? If you have questions about the research in general or about your role in the study, please feel free to contact Laura Legere either at 647-236-4960 or [email protected] or Dr. Judith MacDonnell at 416-736-2100 Ext. 77515 or [email protected]. This research has been reviewed and approved by the Human Participants Review Sub-Committee, York University’s Faculty of Graduate Studies and conforms to the standards of the Canadian Tri-Council Research Ethics guidelines. If you have any questions about this process, or about your rights as a participant in the study, please contact Ms. Alison Collins-Mrakas, Senior Manager & Policy Advisor, Office of Research Ethics, York Research Tower, York University (telephone 416-736-5914 or e-mail [email protected]) or the Graduate Program in Nursing office at 416-736-2100 Ext. 20362.
Consent for Audio-recording
I understand that the interview will be digitally audio-recorded to facilitate the collection of information with the understanding that all information that I provide will be held in confidence and I will not be identified in the summary report or publications. I understand that if I do not want this interview to be audio-recorded that I am still eligible to participate in the study. I understand that I may withdraw this consent at any time.
Signature Date
Participant
Signature Date
Legal Rights and Signatures:
I _________________, consent to participate in Opening The Closet Door on Reproductive Cancer Care for Lesbian and Bisexual Women conducted by Laura Legere and supervised by Dr. Judith MacDonnell. I have understood the nature of this project and wish to participate. I am not waiving any of my legal rights by signing this form. My signature below indicates my consent.
Signature Date
Participant
Signature Date
Appendix H: LGBTQ-inclusive services and cancer resource list Access Alliance Multicultural Health and Community Services
A primary health care centre with community health programs for immigrants, refugees, as well as LGBTQ newcomers.
www.accessalliance.ca Canadian Cancer Society
A Canada-wide society with locations across the province, the Canadian Cancer Society website provides information on a variety of cancer diagnoses as well as links to support services and programs.
www.cancer.ca
Rainbow Health Ontario (RHO)
A province-wide program founded by Sherbourne Health Centre in Toronto and the Rainbow Health Network. The RHO program helps to improve the health and wellbeing of members of LGBTQ communities across Ontario.
www.rainbowhealthontario.ca Sherbourne Health Centre (SHC)
A primary health care centre with a range of LGBTQ-specific health services. SHC also offers programs and community wellness initiatives committed to reducing barriers to health for LGBTQ populations.
www.sherbourne.on.ca The 519
An LGBTQ inclusive community centre in Toronto’s Gay Village that supports a variety of programs and services which promote healthy and welcoming spaces for LGBTQ communities.
www.the519.org Wellspring
A community organization of men and women living with cancer, Wellspring has a variety of programs and services throughout Ontario to help provide support to individuals living with cancer, including gay and lesbian specific support groups. www.wellspring.ca
Women’s Health in Women’s Hands
A community health centre located in Toronto specializing in providing health and wellness to women of diverse cultural backgrounds. There are programs and services for women’s primary health care, clinical services, and counseling.