6. MARCO METODOLÓGICO
6.5 Diseño, construcción y montaje del reactor
1. Outline information form for participants: service users and service providers Summary of information on the childcare research project:
The working title of the project is 'Childcare issues for disabled children, especially with regard to caregivers as they grow older' (taking the term ‘child care’ to mean care for children of all ages, both in the home and outside it).
This project is funded by the OFMDFM/NISRA * and aims to find out about issues related to childcare/parenting a son or daughter with disabilities, especially as parent/carers themselves grow older. Recently we conducted research with older parents (60+ years) of sons and daughters with disabilities and we are now interested to hear from parents/carers of all age groups, and those who provide services for their children. We hope to learn much from parents, service users and those who provide services and be able to inform policy makers, professionals, and other parents about these important issues. The principal investigator is Dr Karola Dillenburger, of the School of Education at Queen's University Belfast, and Dr Lyn McKerr is the research assistant on the project. The Research Ethics Committee of the School of Education of Queens University of Belfast reviewed and approved this research. If you have any further questions you can contact Karola at 028 9097 5985, or Lyn at 028 2954 1991. Alternatively, you may wish to email us at:
[email protected] or [email protected].
2. Participant Information Sheet (parent-carers and service providers) School of Education
Queen’s University of Belfast Research Project
PARTICIPANT INFORMATION SHEET
You are being invited to take part in a research study. Before you decide it is important for you to understand why the research is being done and what it will involve. Please take time to read the following information carefully and discuss it with others if you wish. Ask me if there is anything that is not clear or if you would like more information. Take time to decide whether or not you wish to take part. Thank you for reading this.
Childcare issues for disabled children, especially with regard to caregivers as they grow older
People who are caring for children with disabilities often are under tremendous stress and worry about child care issues. This research aims to find out about childcare issues for a child with disabilities and their parents especially as they themselves grow older. We hope to learn much from parents and stakeholders and be able to inform policy makers, professionals, and other parents about these important issues.
You have been chosen to take part in the study either because you are caring for child with disabilities yourself or you work in an agency that is concerned with childcare issues of children with disabilities and their caregivers.
It is up to you to decide whether or not to take part. If you do decide to take part you will be given this information sheet to keep and be asked to sign a consent form. If you decide to take part you are still free to withdraw at any time and without giving a reason. A decision to withdraw at any time, or a decision not to take part, will not affect the service you receive.
If you decide to take part you will either be interviewed by a member of the research team or take part in a focus group and asked to complete a brief questionnaire. The interview/focus group should not take longer than 45-60 minutes and researcher will be available to help with the questionnaire.
All information that is collected about you during the course of the research will be kept strictly confidential. Any information about you that leaves the agency will have your name removed so that you cannot be recognised from it. Once the study is completed results will be presented in written papers and in oral presentations. Please let us know if you would like a copy of the results.
The Research Ethics Committee of the School of Education of Queens University of Belfast reviewed and approved this research.
If you have any further questions you can contact me,
Dr Karola Dillenburger, at 028 9097 5985 or email me at [email protected] Thank you very much for participating in this study
3. Participant Information Sheet (service user Focus Group 1) School of Education
Queen’s University of Belfast Research Project
PARTICIPANT INFORMATION SHEET
You are being invited to take part in a research study. Before you decide it is important for you to understand why the research is being done and what it will involve. Please take time to read the following information carefully and discuss it with others if you wish. Ask me if there is anything that is not clear or if you would like more information. Take time to decide whether or not you wish to take part. Thank you for reading this.
This research aims to find out about care issues for a child or young person with disabilities and their parents especially as they themselves grow older. We hope to learn much from parents, young people and service providers, and be able to inform policy makers, professionals, and other parents about these important issues.
You have been chosen to take part in the study because you are a service user and you belong to a group that is concerned with disability issues.
It is up to you to decide whether or not to take part. If you do decide to take part you will be given this information sheet to keep and be asked to sign a consent form. If you decide to take part you are still free to withdraw at any time and without giving a reason. A decision to withdraw at any time, or a decision not to take part, will not affect the service you receive.
If you decide to take part you will be involved in a focus group, where your views on care and leisure provision will be discussed. The focus group should not take longer than 30 minutes.
All information that is collected about you during the course of the research will be kept strictly confidential. Any information about you that leaves the agency will have your name removed so that you cannot be recognised from it. Once the study is completed results will be presented in written papers and in oral presentations. Please let us know if you would like a copy of the results.
The Research Ethics Committee of the School of Education of Queens University of Belfast reviewed and approved this research.
If you have any further questions you can contact me,
Dr Karola Dillenburger, at 028 9097 5985 or email me at [email protected] Thank you very much for participating in this study
4. Consent form- on Queen’s University Belfast headed paper CONSENT FORM
Title of Project: Childcare issues for disabled children, especially with regard to caregivers as they grow older
Name of Researcher: Dr Karola Dillenburger
Please initial box
1.I confirm that I have read and understand the information sheet for the above study and have had the opportunity to ask questions.
2.I understand that my participation is voluntary and that I am free to withdraw at any time, without giving any reason, without services or
legal rights being affected.
3.I agree to take part in the above study.
________________________ ________________ ____________________ Name of Participant Date Signature
_________________________ ________________ ____________________
Name of Researcher Date Signature
APPENDIX 2: Interview and Focus Group Schedules