• Review Resource Handout
• Questions or Comments?
References
Alaska D e p artm en t o f E d u catio n and E arly D evelopm ent (A D E E D ). (2013). S pecial edu catio n child cou nt b y district - ages 3-21. Special Education Child Count. R etrieved from h ttp://w w w .eed.state.ak.u s/stats/C hildC ou nt/131001C hildC o un t.pdf
A utism an d D evelo p m en tal D isabilities M o n ito rin g N etw o rk S u rveillance Y ear 2 010 P rin cip al Investigators. (2014). P revalence o f au tism sp ectrum diso rder am o ng c hildren aged 8 years - A utism an d develo pm ental disabilities m o n ito rin g netw ork, 11 sites, U nited States, 2 010. Morbidity and Mortality Weekly Rjport
Surveillance Summaries, 63(2), 1-21. R etriev ed from h ttp://w w w .cdc.go v/m m w r/preview /m m w rhtm l/ss6302a1.htm ? s_ cid= ss6302a1_w B en son, P. R . (2006). T h e im p act o f c h ild sym ptom severity o n d ep ressed m o o d am o ng parents o f children w ith A SD : T h e m ed iatin g role o f stress
p roliferation . Journal O f Autism & Developmental Disorders, 36(5), 685-695.
B itsika, V., Sharpley, C ., & B ell, R . (2013). T h e b u fferin g e ffect o f resilience u p o n stress, anxiety an d d epression in parents o f a child w ith an au tism spectru m disorder. Journal O f Developmental & Physical Disabilities, 25(5), 533-543. d o i:10.1007/s10882-013-9333-5
B oyd, B. A. (2002). E x am in in g the relationship b etw een stress a n d lack o f so cial su p p o rt in m others o f children w ith autism . Focus On Autism & Other Developmental
Disabilities, 17(4), 208. doi:10.1177/10883576020170040301
B urgess, A. F., & G utstein, S. E . (2007). Q u ality o f life fo r p eople w ith autism : R aisin g the standard fo r evalu ating su ccessfu l outcom es. Child & Adolescent Mental
Health, 12(2), 80-86. d o i:1 0.1111/j.1475-3588.2006.00432.x
C lifford, T. T , & M innes, P. (2013). L o g g in g on: E v alu atin g an o nline su p p o rt g ro u p for p arents o f children w ith autism sp ectru m disorders. Journal O f Autism &
Developmental Disorders, 43(7), 1662-1675.
D unn, M . E ., B urbin e, T., B ow ers, C. A ., & T antleff-D unn, S. (2001). M oderators o f stress in p arents o f children w ith autism . Community Mental Health
Journal, 37(1), 39.
H all, H ., & G raff, J. (2010). P a ren tin g challenges in fam ilies o f children w ith autism : A p ilo t study. Issues in Comprhensive Pediatric Nursing, 33(4), 187-204. doi: 10.3109/
01460862.2010.528644
H artley, S. L., B arker, E. T., Seltzer, M . M ., G reenberg, J., B olt, D., Floyd, F , & O rsm ond, G. (2010). T h e relative risk a n d tim in g o f divorce in fam ilies o f children w ith an au tism spectru m disorder. Journal of Family Psychology, 24(4), 449-457. doi:10.1037/a0019847
K eenan, M ., D illenbu rger, K ., D oherty, A ., B yrne, T., & G allagher, S. (2010). T he experiences o f parents d u rin g d iagnosis an d fo rw ard p lan n in g for children w ith autism spectrum disorder. Journal O f Applied Research In Intellectual Disabilities, 23(4), 390-397.
References
Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2007). The health o f caregivers for children w ith disabilities: Caregiver perspectives. Child: Care, Health & Development, 33(2), 180-187. doi:10.1111/j.1365-2214.2006.00644.x
Neely, J., Amatea, E. S., Echevarria-Doan, S., & Tannen, T. (2012). W orking w ith families living w ith Autism: Potential contributions o f marriage and family therapists. Journal O f Marital &
Family Therapy, 38(1), 211 -226. doi:10.1111 /j.1752-0606.2011.00265.x
Paster, A., Brandwein, D., & Walsh, J. (2009). A com parison o f coping strategies used by parents o f children w ith disabilities and parents o f children w ithout disabilities. Research In Developmental
Disabilitie,s: A Multidiscplinary Journd, 30(6), 1337-1342. doi: 10.1016/j.ridd.2009.05.010
Ramisch, J. (2012). Marriage and family therapists w orking with couples who have children w ith autism. Journal O f Marital A n d Family Therapy, 38(2), 305-316. doi: 10.1111 /j. 1752-0606.2010.00210.x
Ravindran, N., & Myers, B. (2012). Cultural influences on perceptions o f health, illness, and disability: A review and focus on autism. Journal O f Child & Family Studies, 21 (2), 311-319. doi: 10.1007/s10826-011-9477-9
Roper, S. O., Allred, D. W , Mandleco, B., Freeborn, D., & Dyches, T. (2014). Caregiver burden and sibling relationships in families raising children w ith disabilities and typically developing children. Families, Systems, & Health, 32(2), 241-246. doi:10.1037/fsh0000047
Russell, G., Golding, J., Norwich, B., Em ond, A., Ford, T , & Steer, C. (2012). Social and behavioural outcom es in children diagnosed w ith autism spectrum disorders: a longitudinal cohort study. Journal of Child Psychology & Psychiatry, 53(7), 735-744. doi:10.1111/j.1469-7610.2011.02490.x
Siman-Tov, A., & Kaniel, S. (2011). Stress and personal resource as predictors o f the adjustment o f parents to autistic children: A multivariate model. Journal of Autism and
Developmental Disorders, 41(7), 879-890.
Solomon, A. H ., & Chung, B. (2012). Understanding autism: H ow family therapists can support parents o f children w ith autism spectrum disorders. Family Process, 51 (2), 250-264. doi: 10.1111 /j. 1545-5300.2012.01399.x
Tehee, E., H onan, R., & Hevey, D. (2009). Factors contributing to stress in parents o f individuals w ith autistic spectrum disorders. Journal O f Applied Research In Intellectual Disabilities, 22(1), 34-42. doi: 10.1111/j.1468-3148.2008.00437.x
Twoy, R., Connolly, P. M., & Novak, J. M. (2007). Coping strategies used by parents o f children w ith autism. Journal O f The American Academy O f Nurse Practitioners, 19(5), 251-260. doi: 10.1111 /j. 1745-7599.2007.00222.x
World H ealth Organization. (2013). Autism spectrum disorders and other developmental disorders: From raising awareness to building capacity. In Mental health. Retrieved from h ttp :// www.who.int/m ental_health/m aternal-child/ autism _report/en/
Zablotsky, B., Boswell, K., & Smith, C. (2012). A n evaluation o f school involvement and satisfaction o f parents o f children w ith ASD. American Journal on Intellectwd and Developmental Disabilities, 117(4), 316-330.
Appendix C
Resources for Caregivers of Children with an ASD
Resource names, phone numbers, and website addresses may change, but these are current as of April, 2015.
Autism & Behavior Educational Liaisons (ABEL) Program - Fairbanks North Star Borough School District
• Training for parents and families 907-451-0573
512 12th Ave (corner of Lacey & 12th), Fairbanks, AK 99701 http: //www.k12northstar.org/departments/sped/abel -program Access Alaska
• Community and Individualized Advocacy • Parent Advocacy Support Group
Third Tuesday of each month, 5:30 to 7 PM at Access Alaska - Fairbanks Call Ann at 479-7940 for more information.
907-479-7940
526 Gaffney Rd, Suite 100, Fairbanks, AK 99701 http: / / accessalaska.org
Alaska Center for Children and Adults • Infant Learning Program
Includes family directed services to support caregivers 907-456-4003
1020 Barnette Street Fairbanks, AK 99701 http: / / alaskacenter.org Autism Society of Alaska
• Psychoeducation
• BeSafe law enforcement interaction training • Parent Coffee Talk
• Annual Alaska Walk for Autism 1-877-374-4421
1024 Barnette Street Fairbanks, AK 99701
Chief Andrew Isaac Health Center
• Individual, family and group therapy 907-451-6682
1717 West Cowles Street Fairbanks, AK 99701
https ://www.tananachiefs .org/patients/caihc/ Fairbanks Community Mental Health Services
• Individual, group, and family therapy • Skill development
• Psychoeducation
• Parenting with Love and Limits 907-371-1300
3830 South Cushman Street Fairbanks, Alaska 99701
http://www.acmhs.com/programs-services/child-family-services Fairbanks Counseling and Adoption
• Individual, family, marital and pre-marital therapy • Parent advocacy
• Parent support and educational groups 907-456-4729
912 Barnette St. Fairbanks, AK 99701
http: //www.f caalaska.org/copy-of- services Family Centered Services of Alaska
• Individual therapy
• Y outh Education Support Services • REACH Respite Home
907-474-0890 1825 Marika Road Fairbanks, AK 99709
Fairbanks Resource Agency • In-home support • Respite care
• Supported Parenting Program 907-456-8901
805 Airport Way Fairbanks, AK 99701
https ://fairbanksresourceagency.wordpres s .com Hope Counseling Center
• Individual, couple and family therapy
• Specialties include parenting, self esteem, and relationship challenges 907-451-8208
926 Aspen St, Fairbanks, AK 99709 http: / / www.hopecounselingcenter.org/ Interior Community Health Center
• Programs for parents to:
Develop self-management skills Reduce stress
Create a healthy lifestyle 907-455-4567
1606 23rd Ave, Fairbanks, AK 99701 http://www.myhealthclinic.org
Resource Center for Parents and Children • Parenting education classes
• Groups and workshops 907-456-2866
726 26th Ave
Fairbanks, AK 99701
http://www.rcpcfairbanks.org Step-In Autism Services of Alaska
• Applied Behavior Analysis for children experiencing disabilities • Parental psychoeduational information
907-374-7001
3550 Airport Way #208 Fairbanks, AK 99708 http://stepinautism.com
Online Resources
Alaska Department of Health and Social Services: Autism
This website provides information on what ASDs are, how to learn more about ASDs, and state and nation wide resources. There is a link to upcoming events and contact information for Alaska’s Autism Program.
http: / / dhss.alaska.gov/dph/ wcfh/Pages/autism/default.aspx Autism Parents Support
This online support is designed by parents and caregivers to provide useful information and stress relief to parents and caregivers of children with ASDs using humor and providing a sense of togetherness.
http: / / www.autismparentssupport.org/index.html Autism Society
The Autism Society supplies resources about ASDs, how to live with ASDs, ways to get involved, current research, news, and resources near you.
http://www.autism-society.org Autism Speaks
Autism Speaks has grown into the world's leading autism science and advocacy organization, dedicated to funding research into the causes, prevention, treatments and a cure for autism; increasing awareness of autism spectrum disorders; and advocating for the needs of individuals with autism and their families.
https ://www.auti smspeaks .org Autism Support Network
The mission of Autism Support Network is to short-cut the uphill battle individuals and families undertake when faced with autism - whether that means the initial diagnosis, the day-to-day living and coping needed, relationship and therapeutic strategies and the latest information. Their support community is intended to further reduce the need to “reinvent the wheel” and collectively pool global knowledge and support from all those touched by ASD wherever they might live.
http://www.autismsupportnetwork.com Child Autism Parent Cafe
This online resource provides parent/sibling support, information, resources and practical strategies to help manage day-to-day living with autism, by way of informative web sites and community outreach.
Stone Soup Group
This family resource guide is packed with information, tips, and contacts for a vast array of different issues facing families caring for children with special needs. It includes information and resources on education, medical needs, transitions, financial programs, and planning for the future.
Family Resource Guide
Appendix D Application References
Alaska Department of Education and Early Development (ADEED). (2013). Special education child count by district - ages 3-21. Special Education Child Count. Retrieved from http://www.eed.state.ak.us/stats/ChildCount/131001ChildCount.pdf
Autism and Developmental Disabilities Monitoring Network Surveillance Year 2010 Principal Investigators. (2014). Prevalence of autism spectrum disorder among children aged 8 years - Autism and developmental disabilities monitoring network, 11 sites, United
States, 2010. Morbidity and Mortality Weekly Report: Surveillance Summaries, 63(2), 1 21. Retrieved from http://www.cdc.gov/mmwr/preview/mmwrhtml/ss6302a1.htm?s_ cid=ss6302a1_w
Benson, P. R. (2006). The impact of child symptom severity on depressed mood among parents of children with ASD: The mediating role of stress proliferation. Journal O f Autism &
Developmental Disorders, 36(5), 685-695.
Bitsika, V., Sharpley, C., & Bell, R. (2013). The buffering effect of resilience upon stress,
anxiety and depression in parents of a child with an autism spectrum disorder. Journal Of
Developmental & Physical Disabilities, 25(5), 533-543. doi:10.1007/s10882-013-9333-5
Boyd, B. A. (2002). Examining the relationship between stress and lack of social support in mothers of children with autism. Focus On Autism & Other Developmental
Disabilities, 77(4), 208. doi:10.1177/10883576020170040301
Burgess, A. F., & Gutstein, S. E. (2007). Quality of life for people with autism: Raising the standard for evaluating successful outcomes. Child & Adolescent Mental Health, 72(2), 80-86. doi: 10.1111/j .1475-3588.2006.00432.x
Clifford, T. T., & Minnes, P. (2013). Logging on: Evaluating an online support group for parents of children with autism spectrum disorders. Journal O f Autism & Developmental
Disorders, 43(7), 1662-1675.
Dunn, M. E., Burbine, T., Bowers, C. A., & Tantleff-Dunn, S. (2001). Moderators of stress in parents of children with autism. Community Mental Health Journal, 37(1), 39.
Hall, H., & Graff, J. (2010). Parenting challenges in families of children with autism: A pilot study. Issues in Comprehensive Pediatric Nursing, 33(4), 187-204. doi:10.3109/ 01460862.2010.528644
Hartley, S. L., Barker, E. T., Seltzer, M. M., Greenberg, J., Bolt, D., Floyd, F., & Orsmond, G. (2010). The relative risk and timing of divorce in families of children with an autism spectrum disorder. Journal of Family Psychology, 24(4), 449-457. doi:10.1037/a0019847 Keenan, M., Dillenburger, K., Doherty, A., Byrne, T., & Gallagher, S. (2010). The experiences
of parents during diagnosis and forward planning for children with autism spectrum disorder. Journal O f Applied Research In Intellectual Disabilities, 23(4), 390-397. Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2007). The health of caregivers for
children with disabilities: Caregiver perspectives. Child: Care, Health &
Development, 33(2), 180-187. doi:10.1111/j.1365-2214.2006.00644.x
Neely, J., Amatea, E. S., Echevarria-Doan, S., & Tannen, T. (2012). Working with families living with Autism: Potential contributions of marriage and family therapists. Journal Of
Marital & Family Therapy, 35(1), 211-226. doi:10.1111/j.1752-0606.2011.00265.x
Paster, A., Brandwein, D., & Walsh, J. (2009). A comparison of coping strategies used by parents of children with disabilities and parents of children without disabilities. Research
In Developmental Disabilities: A Multidisciplinary Journal, 30(6), 1337-1342. doi:
10.1016/j.ridd.2009.05.010
Ramisch, J. (2012). Marriage and family therapists working with couples who have children with autism. Journal O f Marital And Family Therapy, 38(2), 305-316. doi: 10.1111/j.1752- 0606.2010.00210.x
Ravindran, N., & Myers, B. (2012). Cultural influences on perceptions of health, illness, and disability: A review and focus on autism. Journal O f Child & Family Studies, 27(2), 311 319. doi:10.1007/s 10826-011 -9477-9
Roper, S. O., Allred, D. W., Mandleco, B., Freeborn, D., & Dyches, T. (2014). Caregiver burden and sibling relationships in families raising children with disabilities and typically
developing children. Families, Systems, & Health, 32(2), 241-246. doi:10.1037/fsh0000047
Russell, G., Golding, J., Norwich, B., Emond, A., Ford, T., & Steer, C. (2012). Social and behavioural outcomes in children diagnosed with autism spectrum disorders: a
longitudinal cohort study. Journal of Child Psychology & Psychiatry, 53(7), 735-744. doi:10.1111/j.1469-7610.2011.02490.x
Siman-Tov, A., & Kaniel, S. (2011). Stress and personal resource as predictors of the
adjustment of parents to autistic children: A multivariate model. Journal of Autism and
Developmental Disorders, 47(7), 879-890.
Solomon, A. H., & Chung, B. (2012). Understanding autism: How family therapists can support parents of children with autism spectrum disorders. Family Process, 57(2), 250-264. doi:10.1111/j.1545-5300.2012.01399.x
Tehee, E., Honan, R., & Hevey, D. (2009). Factors contributing to stress in parents of individuals with autistic spectrum disorders. Journal O f Applied Research In Intellectual
Disabilities, 22(1), 34-42. doi:10.1111/j.1468-3148.2008.00437.x
Twoy, R., Connolly, P. M., & Novak, J. M. (2007). Coping strategies used by parents of children with autism. Journal Of The American Academy O f Nurse Practitioners, 19(5), 251-260. doi: 10.1111/j .1745-7599.2007.00222.x
Zablotsky, B., Boswell, K., & Smith, C. (2012). An evaluation of school involvement and satisfaction of parents of children with ASD. American Journal on Intellectual and