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8. ANÁLISIS EXTERNO

8.2. INFORME ESCUELA DE ADMINITRACIÓN DE NEGOCIOS EAN

Child Information Form for VPI Group

(To be completed by parents of children in the VPI group) Please provide the following information regarding your child:

Male Female (please circle) Date of Birth:____________________________

Grade in School: ________

Please circle Yes or No to the following questions: 1. Has your child ever had any hearing problems? No Yes

If yes: a) Does the child have a history of permanent or reversible hearing loss? No Yes b) Has your child had surgery on their ear(s)? No Yes

2. To your knowledge, is your child’s hearing within normal limits at this time? No Yes 3. Is your child currently experiencing any cold or flu-like symptoms, or do they have nasal

congestion? No Yes

4. Has your child been identified with a learning disability? No Yes

If yes, in what subject area(s) is your child experiencing difficulties?

Math____ Reading____ Spelling____ Writing_____ What kind of educational assistance is your child provided with at school? Resource teacher_____ Teaching assistant_____ After school tutor_____ Other (please specify)___________

5. Is English the primary language spoken in your home? No Yes

6. Besides English, are there other languages spoken in your home? No Yes…..if yes, please specify_______________________

Does your child speak (Y/N) or understand (Y/N) this language?

Appendix J

Participant Code: ____________

Child Information Form for Control Group

(To be completed by parents of children in the control group) Please provide the following information regarding your child.

Male Female (please circle) Date of Birth:____________________________ Grade in School: ____

Please circle Yes or No to the following questions:

1. Does your child have an identified voice or speech disorder? No Yes 2. Has your child ever had any hearing problems? No Yes

If yes: a) Does your child have a history of permanent or reversible hearing loss? No Yes

b) Has your child had surgery on their ear(s)? No Yes

c) Does he/she currently have tubes placed in their ear(s)? No Yes d) Has he/she had tubes placed in their ear(s) in the past? No Yes 3. To your knowledge, is your child’s hearing within normal limits at this time? No Yes 4. Is your child currently experiencing any cold or flu-like symptoms, or do they have nasal congestion? No Yes

5. Has your child been identified with a learning disability? No Yes

If yes, in what subject area(s) is your child experiencing difficulties? Math____ Reading____ Spelling____ Writing_____

What kind of educational assistance is your child provided with at school?

Resource teacher_____ Teaching assistant_____ After school tutor_____ Other (please specify)____________________________

6. Is English the primary language spoken in your home? No Yes

7. Besides English, are there other languages spoken in your home? No Yes…..if yes, please specify_______________________

Appendix K

American Cleft-Palate Association Clinical Data Base Committee Speech Pathology Data Entry Form (Revised)

Participant Code: Patient Age: Date: Clinician: 1. Hypernasality 1= normal 2= mild 3= mild-moderate 4= moderate 5= moderate-severe 6= severe 2. Hyponasality 1= normal 2= mild 3= mild-moderate 4= moderate 5= moderate-severe 6= severe 3. Audible Nasal Emission 1= normal 2= mild 3= mild-moderate 4= moderate 5= moderate-severe 6= severe 4. Velopharyngeal Function 1= adequate 2= marginal 3= inadequate 5. Articulation Proficiency 1= normal 2= mild 3= mild-moderate 4= moderate 5= moderate-severe 6= severe 6. Overall Intelligibility 1= normal 2= mild 3= mild-moderate 4= moderate 5= moderate-severe 6= severe 7. Compensatory Articulation 1= none observed 2= glottal stop 3= pharyngeal fricative 4= pharyngeal stop 5= mid-dorsal palatal stop 6= posterior nasal fricative

8. Voice Quality 1= normal 2= mild abnormality 3= mild-moderate abnormality 4= moderate abnormality 5= moderate-severe abnormality

6= severe voice abnormality

Appendix L

SPEECH PHRASES FOR VELOPHARYNGEAL ASSESSMENT

1) “Patty ate apple pie”

2) “Sissy sees the sky”

3) “Go get a cookie for Kate”

4) “She likes high boots”

5) “puppy, puppy”

6) “Jerry’s slippers were blue”

7) “Stop the bus”

8) “My mama makes lemon jam”

9) “Mommy, mommy, mommy”

Reproduced from: Conley, S.F., Gosain, A.K., Marks, S.M., & Larson, D.L. (1997). Identification and assessment of velopharyngeal inadequacy.

Appendix M

Participant Code: _________________

VPI Group Brief Participant Health History (Completed by Researcher’s Chart Review)

1. What is the underlying structural cause of the child’s velopharyngeal insufficiency? (circle all that apply)

a) Isolated cleft in soft palate only b) Isolated cleft in hard and soft palate c) Unilateral cleft lip and palate d) Bilateral cleft lip and palate e) Submucous cleft palate f) Adenoidectomy

g) Other (please specify)___________________ h) Unknown

2. Has the child been diagnosed with a syndrome [e.g., Velocardiofacial syndrome/22q11.2 deletion syndrome, Stickler syndrome, Treacher Collins syndrome, etc.]? No Yes…..if yes, please specify_________________

3. Has the child been diagnosed with any other voice or speech disorder in addition to hypernasality?

No Yes………if yes, please specify: _____________________

4. Has the child received any of the following treatments for velopharyngeal insufficiency? a) speech therapy: No Yes

If yes, for what areas: articulation____, resonance____, language____, voice____ b) surgery: No Yes

If yes: a) type of surgery________________________ b) time since last surgery (in months) ________ c) other (please specify) _____________________

5. Does the child have a history of middle ear infections? No Yes

If yes: a) Does he/she currently have tubes placed in their ear(s)? No Yes b) Has he/she had tubes placed in their ear(s) in the past? No Yes

Appendix N

Frequency Distribution of Perceptual Assessment (ACPA) Scores of Speech Characteristics of Children in the VPI Group (n=20)

Rating Scalea (1-6)

Speech Characteristics 1 2 3 4 5 6 Median Score

Hypernasality (n) 0 5 4 7 1 3 4.00

Hyponasality (n) 16 3 1 0 0 0 1.00

Audible Nasal Emission (n) 0 3 4 8 2 3 4.00 Overall Intelligibility (n) 0 8 7 2 3 0 3.00 Articulation Proficiency (n) 0 2 7 7 2 2 3.00

Voice Quality (n) 17 2 1 0 0 0 1.00

Note. Abbreviations: ACPA = American Cleft-Palate Association Clinical Data Base Committee Speech Pathology Data Entry Form (Revised); VPI = velopharyngeal

insufficiency; a Rating scale of severity of speech characteristic is a 6 point ordinal scale: 1 = normal; 2 = mild; 3 = mild-moderate; 4 = moderate; 5 = moderate-severe; 6 = severe.

Curriculum Vitae

Name: Agnieszka Dzioba

Post-secondary The University of Western Ontario

Education and London, Ontario, Canada

Degrees: 2002-2006 BHSc.(Hons)

The University of Western Ontario London, Ontario, Canada

2006-2008 M.Sc.

The University of Western Ontario London, Ontario, Canada

2008-2014 Ph.D. (Candidate)

Honours and Dean’s Entrance Scholarship

Awards: 2008-2009

Ontario Graduate Scholarship in Science and Technology 2010-2011

Ontario Graduate Scholarship 2011-2012, 2012-2013

Related Work Teaching Assistant

Experience The University of Western Ontario

2006-2008, 2010 Research Assistant

The University of Western Ontario 2007

Editorial Consultant

Quality of Life Research Journal 2010

Editorial Consultant

Cleft Palate Craniofacial Journal 2010-2014

Publications:

Brandt, M.G., Rotenberg, B.W., Moore, C.C., Bornbaum, C.C., Dzioba, A., Glicksman, J.T., & Doyle, P.C. (2014). Impact of nasal surgery on speech resonance. Annals of Otology, Rhinology, and Laryngology, 123(8), 564-570.

Dzioba, A., Skarakis-Doyle, E., Doyle, P. C., Campbell, W., & Dykstra, A. D. (2013). A comprehensive description of functioning and disability in children with

velopharyngeal insufficiency. Journal of Communication Disorders, 46(4), 388- 400.

Dzioba, A., Husein, M., Dworschak-Stokan, A., & Doyle, P.C. Evaluation of

Communication Apprehension in Adolescents with Velopharyngeal Insufficiency. Cleft Palate-Craniofacial Journal, 49(3), 17-24.

Yeung, J.C., Fung, K., Bornbaum, C.C., Day, A.M.B., Dzioba, A., Parsa, V., Levee, T., Doyle, P.C. (2011). Clinical Approach to Monitoring Variability Associated with Adductor Spasmotic Dysphonia (ADSD). Journal of Otolaryngology Head and Neck Surgery, 40(4), 343-349.

Bechard, D., Day, A.M.B., Dufour, S., Dzioba, A., McCabe, C., & Rasmussen, S. (2010). How Medical Students Conceptualize Disability: Implication for

Interprofessional Practice and Education, Journal of Research in Interprofessional Practice and Education, 1(2), 159-178.

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