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RESEARCH

INFORMATION SHEET FOR PARTICIPANTS

Investigating experiences of a psychiatric treatment under section

The title of the Project: To be heard: a Qualitative e plo atio of i di iduals experiences, views and meanings of psychiatric in-patient treatment under the section and its impact on the recovery process.

Thank you for reading this information

INTRODUCTION

You a e ei g i ited to take pa t i the esea h stud e plo i g peoples e pe ie es of a psychiatric in-patient treatment under section. If you wish to consider giving consent to take part, please take the time to read the following information. Below, I have included details about the research that I hope will help you understand why the research is being carried out and what it involves.

WHO AM I?

My name is Anna Wachowska, and I will be conducting the study. I am a trainee counselling psychologist and the research forms part of the requirements for my counselling psychology training at City University London. The research is supervised by Dr Sören Nils Petter who is a Chartered Counselling Psychologist, and a Lecturer at City University London. This study has been ethically approved by City University Research Ethics Committee.

WHAT IS THE RESEARCH ABOUT?

This stud is i te ested i fi di g out a out i di iduals e pe ie es a d ie s of thei treatment on a closed psychiatric ward under section. It aims to gain a better understanding of the impact psychiatric treatment has on individuals with psychosis and their recovery process through exploring how individuals make sense of themselves, their experience and the world around them.

The research hopes to enhance knowledge on the subject and fill in gaps in existing research. Its objective is to promote the views of people in distress as well as provide guidance and inspiration towards the quality improvement of an in - patient psychiatric care.

WHO CAN BE INVITED TO TAKE PART?

You are being approached to participate in the study because you might have experienced symptoms of psychosis in the past or are currently experiencing symptoms of psychosis and you have been in the past treated on the NHS in-patient psychiatric ward (on a non-voluntary basis). It is required that at least six months pe iod ust ha e passed si e i di iduals last ad issio . Ho e e , i di iduals ho experienced drug-induced psychosis, have suffered brain injury or have an organic brain disease or diagnosis of learning disability will be excluded from the study. A total of 6 to 8 participants would be invited to take part in the study.

WHAT DOES IT MEAN TO TAKE PART?

Participation in the research is voluntary – it is entirely up to you whether you wish to take part or not. If you decide to participate, you will be given a copy of this

Information Sheet, and you will be asked to sign a Consent Form.

WHAT IF I CHANGE MY MIND DURING THE PROCESS?

Even after giving written consent you will have the right to withdraw from the study at any time without a need to explain why and without any adverse consequences. If you decide to withdraw any information that was collected from you as part of the research would be erased. You will also have the right to decline to offer any particular information requested from you during the study.

WHAT IS INVOLVED?

If you meet the criteria for the study and should you consider taking part I will be happy to answer any questions or concerns you might have. Should you decide to participate, I would ask you to sign a Consent Form. It is important that face to face interview is arranged for the purpose of this study. During the meeting we would discuss details of the study by going through this Information Sheet again, answering any remaining questions or concerns you might have. Should you decide to participate, I would ask you to sign a Consent Form. The interview will be informal and carried out in a conversational style. It is suggested that the interviews are conducted at City University premises in London (private room hired) however it may be possible to arrange for an alternative location. It would be possible for your commuting expenses to be partly reimbursed if required. The length of the whole process is likely to vary from person to person. However it estimated it might last from an hour to two hours, this can be shorter or longer than that. Before the interview begins, I will ask you some basic background information about yourself. You will also be asked about symptoms of psychosis that you may have. In the interview, you will be asked about your experiences of being on a psychiatric ward and the impact such treatment had on your recovery process. You will be asked to think about yourself and your relationship to others as related to your experiences on a closed ward. You will also be asked about your views and evaluation of psychiatric treatment.

WILL TAKING PART BE CONFIDENTIAL?

All information about you in this study will be kept strictly confidential and unidentifiable in written or published material. Your names and details will not be linked with the research materials in any way. Interviews will be recorded using the voice recorder, and recordings will bekept in a safe storage system (locked memory) for up to 5 years providing audit trail evidence of the study being conducted. You will have the right to review the recordings and edit the transcripts at any time during the process. The interview transcripts would be stored in electronic versions, in an anonymous format. Your information, including consent forms, will be stored in a secure location accessible only by the researchers. In order to preserve anonymity, you will be given a participant number so that you will not be recognisable in any way. You can choose your own pseudonyms which would be used in writing up stage of the data.

However, if during the process you disclose any criminal activity or information indicating that you may be at risk to yourself or others the confidentiality will be broken and your GP or other appropriate authorities informed. Before the interview

begins, you will be asked to consent to confidentiality being broken in the situation where such disclosure is made.

WHAT WILL HAPPEN WITH THE RESULTS OF THE STUDY?

Once the interviews are completed, the audio-recordings will be transcribed and analysed. The results will be written up, and anonymous quotes from interviews used to support the data interpretation. It is also important that the findings are meaningful and credible to participants themselves. I, therefore, would like to share the interpretation of interview answers with you, and I would welcome any comments and suggestions including criticism on the subject. You would only receive findings from your own interview process. Your involvement would be greatly appreciated however it is entirely up to you whether you wish to engage in that part of the process or not.

Finally, it is hoped that the study results will be published in a psychological or psychiatry allied research journal.

ARE THERE ANY POTENTIAL BENEFITS TO TAKING PART?

Overall, little research has focused on direct experiences of patients on acute psychiatric wards. Your experiences and insights are therefore of great value and will help to enrich our understanding of how psychiatric treatment is experienced, how it affects perso s se se of self a d ho it a e i p o ed.

Research also indicates that reflecting and talking about significant life experiences such as mental health or recovery can be beneficial and bring about a therapeutic effect. This may be an opportunity for you to contemplate and think about the meaning of your experiences and how they impacted on your own identity and others in your life.

ARE THERE ANY POTENTIAL RISKS TO TAKING PART?

It is possible that thinking and talking about your experiences and your mental health which includes answering questions about your feelings may be upsetting. If you become distressed during the interview appropriate support will be offered to you by myself, Anna Wachowska in the first instance. The interview can be terminated and postponed if you feel unable to continue and further help offered to you by identified/chosen support network/group, case coordinator, case manager or your GP. For this reason, you would be asked to consent for appropriate persons to be contacted if you do become distressed during the process.

MORE ABOUT RESEARCH DESIGN and METHOD

This will be a qualitative study, conducted from a phenomenological perspective. Phenomenology is the study that is concerned with nature and meaning of phenomena. It places emphasis on how the world is perceived through experience or in our consciousness. Phenomenology is associated with narratives, subjectivity and lived experiences. It seeks to understand meanings in human interactions and events, affirming the importance of the perspective of individuals, their experiences and their view of the world.

WHAT IF I HAVE FURTHER QUESTIONS OR CONCERNS?

Please contact myself, Anna Wachowska (tel. ) for further questions or concerns related to any aspect of the research. I will do my best to answer your queries and clarify misunderstandings. If you remain unhappy and wish to make a formal complaint about the research, you can o ta t the “e eta to the U i e sit s Senate Research Ethics Committee on 020 7040 3040 or via email:

Thank you for your time and consideration

Resear her’s Co ta t Details:

Name: Anna Wachowska, Trainee Counselling Psychologist, City University London Email:

Telephone Number:

Address: Department of Psychology, School of Arts and Social Sciences, City University London,

Northampton Square, London EC1V 0HB

City University Telephone Number: (0)20 7040 0167; Website: http://www.city.ac.uk

Research SupervisorContact Details:

Name: Nils Sören Petter Email:

Telephone number:

Address: Department of Psychology, School of Arts and Social Sciences, City University London,