9. MEDIDAS PREVENTIVAS Y CORRECTORAS
9.2. MEDIDAS EN FASE DE FUNCIONAMIENTO
Evidence-based medicine (EBM) is “the conscientious, explicit and judicious use of current best evidence in mak- ing decisions about the care of individual patients” (Sackett, Straus, Richardson, Rosenberg, & Haynes, 2000). Within Western countries, EBM has grown in importance in the clinical arena as a mechanism to elimi- nate the over- or under-use of medical services and thus to maximize efficient care (Sackett et al., 2000). Few anthro- pologists have begun to explore the cultural values under- pinning both the reliance on randomized clinical trials to inform health policy, and health professionals’ resistance to implementing such guidelines into clinical practice (Bogdan-Lovis, 2001; Gordon, 2003b). Ethically, EBM raises questions about macro-allocation in the provision of quality care because health insurance plans increasingly depend on EBM guidelines to determine which problems receive coverage (Hope, 1995). Since EBM has become integrated into medical education, future research could investigate shifts in medical knowledge (epistemology) and concomitant changes in clinical practice by, for instance, investigating how physicians negotiate between drawing on population-based data (consistent with the goals of public health) and drawing on the knowledge and preferences of individual patients (consistent with the traditional goals of medicine and ethics) (Tonelli, 1998). Thus, research in EBM is a fertile area that entails the intersection of cultural studies of science, decision- making, and health policy.
C
ONCLUSIONAnthropological research in bioethics has flourished in its first decade. We can see that the relationship between anthropology and bioethics is twofold: some do research “of” bioethics as a cultural domain while others do research “in” bioethics, often collaborating with others outside the field to better address more applied concerns. The field of bioethics as well as its methods, theories, and practices are all rich areas for anthropological inquiry given the diverse range of topics and issues that call for a contextualized exploration of what it means to be a moral human being. The continued development of biotechno- logical advances, health care challenges, and greater con- cern for the moral life or suffering experienced by patients, families, and clinicians in a global world context generates new questions about the definition of life and death, self, other, personhood, power dynamics, and right and wrong in the context of illness, health, and healing. To answer these questions and to better inform health policies, anthropologists are increasingly participating in interdisciplinary collaborative bioethics research. Such participation enables anthropological concerns to be given greater voice in ensuring that taken-for-granted cul- tural assumptions are not accepted prima facie but are instead contextually considered when analyzing theory and practice within the bioethics enterprise.
R
EFERENCESAdvisory Committee on Human Radiation Experiments (1996). The
human radiation experiments: Final report of the President’s Advisory Committee. New York: Oxford University Press.
Anspach, R. R. (1993). Deciding who lives: Fateful choices in the
intensive-care nursery. Berkeley: University of California Press.
Barnes, D. M., Davis, A. J., Moran, T., Portillo, C. J., & Koenig, B. A. (1998). Informed consent in a multicultural cancer patient population: Implications for nursing practice. Nursing Ethics, 5, 412–423.
Beauchamp, T. L., & Childress, J. F. (1994). Principles of biomedical
ethics (4th ed.). New York: Oxford University Press.
Beecher, H. K. (1966). Consent in clinical experimentation: Myth and reality. Journal of the American Medical Association, 195, 34–35.
Beeson, D., & Doksum, T. (2001). Family values and resistance to genetic testing. In B. Hoffmaster (Ed.), Bioethics in social context (pp. 153–179). Philadelphia, PA: Temple University Press. Blackhall, L. J., Murphy, S. T., Frank, G., Michel, V., & Azen, S. (1995).
Ethnicity and attitudes toward patient autonomy. Journal of the
American Medical Association, 274, 820–825.
Blackhall, L. J., Gelya F., Murphy, S. T., Michel, V., Palmer, J. M., & Azen, A. (1999). Ethnicity and attitudes toward life sustaining technology. Social Science and Medicine, 48, 1779–1789. Bogdan-Lovis, L. (2001, October). Evidence-based medicine: The
promise and the tyranny. Paper presented at the American Society for Bioethics and Humanities Annual Meeting, Nashville, TN. Bosk, C. (1979). Forgive and remember: Managing medical failure.
Chicago, IL: University of Chicago Press.
Bosk, C. (1992). All God’s mistakes: Genetic counseling in a pediatric hospital. Chicago, IL: University of Chicago Press.
Bosk, C., & Frader, J. (1998). Institutional ethics committees: Sociological oxymoron, empirical black box. In R. DeVries & J. Subedi (Eds.), Bioethics and society: Constructing the ethical
enterprise (pp. 94–116). Upper Saddle River, NJ: Prentice Hall.
Brodwin, P. (Ed.). (2000). Biotechnology and culture: Bodies, anxieties,
ethics. Bloomington: Indiana University Press.
Brodwin, P. (2001). Pluralism and politics in global bioethics education.
Annals of Behavioral Science and Medical Education, 7, 80–86.
Brodwin, P. (2002). Genetics, identity, and the anthropology of essentialism. Anthropological Quarterly, 75, 323–330.
Brown, K. H. (1994). Outside the Garden of Eden: Rural values and healthcare reform. Cambridge Quarterly of Healthcare Ethics, 3, 329–337.
Browner, C. H., Preloran, H. M., & Cox, S. J. (1999). Ethnicity, bioethics, and prenatal diagnosis: The amniocentesis decisions of Mexican-origin women and their partners. American Journal of
Public Health, 89, 1658–1666.
Burgess, M., Rodney, P., Coward, H., Ratanakul, R., & Suwonnakote, K. (1999). Pediatric care: Judgments about best interests at the onset of life. In H. Coward & P. Ratanakul (Eds.), A cross-cultural
dialogue on health care ethics (pp. 160–175). Waterloo, Ontario,
Canada: Wilfrid Laurier University Press.
Callahan, D., & Jennings, B. (2002). Ethics and public health: Forging a strong relationship. American Journal of Public Health, 92, 169–176.
Carrese, J. A., & Rhodes, L. A. (1995). Western bioethics on the Navajo reservation. Journal of the American Medical Association, 274, 826–829.
Carter, M., & Klugman, C. (2001). Cultural engagement in clinical ethics: A model for ethics consultation. Cambridge Quarterly of
Healthcare Ethics, 10, 16–33.
Christakis, N. (1999). Death foretold: Prophecy and prognosis in
medical care. Chicago, IL: University of Chicago Press.
Churchill, L. (1999). Are we professionals? A critical look at the social role of bioethicists. Daedalus, 128, 253–274.
Cohen, L. (1999). Where it hurts: Indian material for an ethics of organ transplantation. Daedalus, 128, 135–165.
Council for International Organizations of Medical Sciences (COIMS) in collaboration with the World Health Organization (WHO) (1993). International ethical guidelines for biomedical research
involving human subjects. Geneva, Switzerland.
Coward, H., & Ratanakul, P. (Eds.). (1999). A cross-cultural dialogue
on health care ethics. Waterloo, Ontario, Canada: Wilfrid Laurier
University Press.
Crawley, L. M., Marshall, P. A., & Koenig, B. A. (2001). Respecting cul- tural differences at the end of life. In L. Snyder & T. E. Quill (Eds.),
Physician’s guide to end-of-life care (pp. 35–55). Philadelphia, PA:
American College of Physicians.
Crigger, B. (1995). Negotiating the moral order: Paradoxes of ethics consultation. Kennedy Institute of Ethics Journal, 5, 89–112. Crigger, B. (1998). As time goes by: An intellectual ethnography of
bioethics. In R. DeVries & J. Subedi (Eds.), Bioethics and society:
Constructing the ethical enterprise (pp. 192–215). Upper Saddle
River, NJ: Prentice Hall.
Daniels, N., Kennedy, B., & Kawachi, I. (1999). Why justice is good for our health: The social determinants of health inequalities.
Daedalus, 128, 215–251.
Das, V. (1999). Public good, ethics, and everyday life: Beyond the boundaries of bioethics. Daedalus, 128, 99–133.
Das, V. (2000). The practice of organ transplants: Networks, documents, translations. In M. Lock, A. Young, & A. Cambrosio (Eds.),
Living and working with the new medical technologies: Intersections of inquiry (pp. 263–287). New York: Cambridge
University Press.
DelVecchio Good, M.-J., Good, B. J., Schaffer, C., & Lind, S. E. (1990). American oncology and the discourse on hope. Culture, Medicine
and Psychiatry, 14, 59–79.
DelVecchio Good, M.-J., Munakata, T., Kobayashi, Y., Mattingly, C., & Good, B.J. (1994). Oncology and narrative time. Social Science
and Medicine, 38, 855–862.
DeVries, R., & Conrad, P. (1998). Why bioethics needs sociology. In R. DeVries & J. Subedi (Eds.), Bioethics and society: Constructing
the ethical enterprise (pp. 233–257). Upper Saddle River, NJ:
Prentice Hall.
Ellerby, J. H., McKenzie, J., Mckay, S., Gariepy, G. J., & Kaufert, J. M. (2000). Bioethics for Clinicians: 18. Aboriginal cultures. Canadian
Medical Association Journal, 163, 845–850.
Fabrega, H. (1990). An ethnomedical perspective of medical ethics. The
Journal of Medicine and Philosophy, 15, 593–625.
Farmer, P. (1999). Infections and inequalities: The modern plagues. Berkeley: University of California Press.
Fletcher, J. C., & Siegler, M. (1996). What are the goals of ethics consultation? A consensus statement. Journal of Clinical Ethics,
7, 122–126.
Flynn, P. A. (1992). Moral ordering and the social construction of bioethics. (Doctoral Dissertation, University of California, San Francisco, 1992). Dissertation Abstracts International, 52(07), 2706. Fox, R. C. (1990). The evolution of American bioethics: A sociological perspective. In G. Weisz (Ed.), Social science perspectives on med-
ical ethics. Philadelphia: University of Pennsylvania Press.
Fox, R. C., & Swazey, J. (1978). The courage to fail: A social view of
organ transplants and dialysis. Chicago, IL: University of Chicago
Press.
Fox, R. C., & Swazey, J. (1984). Medical morality is not bioethics— medical ethics in China and the United States. Perspectives in
Biology Medicine, 27, 336–360.
Fox, R. C., & Swazey, J. (1992). Spare parts: Organ replacement in
American society. New York: Oxford University Press.
Fox, R. C., Swazey, J., & Cameron, E. M. (1984). Social and ethical problems in the treatment of end-stage renal disease patients. In R.G. Narins (Ed.), Controversies in nephrology and hypertension (pp. 45–70). New York: Churchill Livingstone.
Frank, G., Blackhall, L. J., Michel, V., Murphy, S. T., Azen, S. P., & Park, K. (1998). A discourse of relationships in bioethics: Patient autonomy and end-of-life decision making among elderly Korean Americans. Medical Anthropology Quarterly, 12, 403–423.
Franklin, S. (1998). Making miracles: Scientific progress and the facts of life. In S. Franklin & H. Ragoné (Eds.), Reproducing reproduc-
tion: Kinship, power, and technological innovation (pp. 102–117).
Philadelphia: University of Pennsylvania Press.
Gaines, A. D. (1982). Cultural definitions, behavior and the person in American psychiatry. In A. Marsella & G. White (Eds.), Cultural
conceptions of mental health and therapy (pp. 167–192).
Dordrecht, The Netherlands: Reidel.
Gaines, A. D. (1992). From DSM-I to III-R: Voices of self, mastery and the other: A cultural constructivist reading of United States psychiatric classification. Social Science and Medicine, 35, 3–24.
Gaines, A. D. (1998). Culture and values at the intersection of science and suffering: Encountering ethics, genetics, and Alzheimer disease. In S. Post & P. Whitehouse (Eds.), Genetic testing for
Alzheimer disease (pp. 256–274). Baltimore, MD: Johns Hopkins
University Press.
Gilligan, C. (1982). In a different voice: Psychological theory and
women’s development. Cambridge, MA: Harvard University Press.
Gordon, D. R. (1991). Female circumcision and genital operations in Egypt and the Sudan: A dilemma for medical anthropology.
Medical Anthropology Quarterly, 5, 3–14.
Gordon, D. R. (1988). Tenacious assumptions in Western medicine. In M. Lock & D. R. Gordon (Eds.), Biomedicine examined (pp. 19–56). Dordrecht, The Netherlands: Kluwer Academic. Gordon, D. R. (1990). Embodying illness, embodying cancer. Culture,
Medicine and Psychiatry, 14, 273–295.
Gordon, D. R. (1994). The ethics of ambiguity and concealment around cancer: Interpretations through a local Italian world. In P. Benner (Ed.), Interpretive phenomenology: Embodiment, caring and ethics
in health and illness (pp. 279–322). Thousand Oaks, CA: Sage.
Gordon, D. R., & Paci, E. (1997). Disclosure practices and cultural narratives: Understanding concealment and silence around cancer in Tuscany, Italy. Social Science and Medicine, 44, 1433–1452. Gordon, E. J. (2000). Preventing waste: A ritual analysis of candidate
selection for kidney transplantation. Anthropology and Medicine,
7, 351–372.
Gordon, E. J. (2001a). Patients’ decisions for treatment of end-stage renal disease and their implications for access to transplantation.
Social Science and Medicine, 53, 971–987.
Gordon, E. J. (2001b). “They don’t have to suffer for me”: Why dialy- sis patients refuse offers of living donor kidneys. Medical
Anthropology Quarterly, 5, 1–22.
Gordon, E. J. (2002). What “race” cannot tell us about access to kidney transplantation. Cambridge Quarterly for Healthcare
Ethics, 11, 134–141.
Gordon, E. J., & Daugherty C. K. (2003a). “Hitting you over the head”: Oncologists’ disclosure of prognosis to advanced cancer patients.
Bioethics, 17, 142–168.
Gordon, E. J. (2003b). Policy-making for daily hemodialysis: The uses and abuses of evidence-based medicine. Paper presented at the 102nd annual meeting of the American Anthropological Association. Chicago, IL.
Guillemin, J. H., & Holmstrum, L. L. (1986). Mixed blessings: Intensive
care for newborns. New York: Oxford University Press.
Hahn, R. A., & Gaines, A. D. (Eds.). (1985). Physicians of western
medicine: Anthropological approaches to theory and practice.
Dordrecht, The Netherlands: D. Reidel.
Haimes, E. (2002). What can the social sciences contribute to the study of ethics?: Theoretical, empirical and substantive considerations.
Bioethics, 16, 89–113.
Heimer, C. A., & Staffen, L. R. (1998). For the sake of the children: The
social organization of responsibility in the hospital and the home.
Chicago, IL: University of Chicago Press.
Hern, H. E., Koenig, B. A., Moore, L. J., & Marshall, P. A. (1998). The difference that culture can make in end-of-life decision making.
Cambridge Quarterly of Healthcare Ethics, 7, 27–40.
Hoffmaster, B. (1990). Morality and the social sciences. In G. Weisz (Ed.), Social science perspectives on medical ethics (pp. 241–260). Philadelphia: University of Pennsylvania Press. Hoffmaster, B. (1992). Can ethnography save the life of medical ethics?
Social Science and Medicine, 35, 1421–1431.
Hogle, L. F. (1999). Recovering the nation’s body: Cultural memory,
medicine and the politics of redemption. New Brunswick, NJ:
Rutgers University Press.
Hope, T. (1995). Evidence based medicine and ethics. Journal of
Medical Ethics, 21, 259–260.
Ikels, C. (1997). Kidney failure and transplantation in China. Social
Science and Medicine, 44, 1271–1283.
Jecker, N. S., & Berg, A. O. (1992). Allocating medical resources in rural America: Alternative perceptions of justice. Social Science
and Medicine, 34, 467–474.
Jecker, N. S., Carrese, J. A., & Pearlman, R. A. (1995). Caring for patients in cross-cultural settings. Hastings Center Report, 25, 6–14. Jennings, B. (1990). Ethics and ethnography in neonatal intensive care.
In G. Weisz (Ed.), Social science perspectives on medical ethics (pp. 261–272). Philadelphia: University of Pennsylvania Press. Joint Commission on Accreditation of Healthcare Organizations (1992).
Patients rights. 1992 accreditation manual for hospitals
(R.I. 1.1.6.1, pp. 103–105). Chicago, IL: JCAHO. Jones, J. H. (1993). Bad Blood. New York: Free Press.
Joralemon, D. (1995). Organ wars: The battle for body parts. Medical
Anthropology Quarterly, 9, 335–356.
Joralemon, D. (2000). The ethics of the organ market: Lloyd Cohen and the free marketeers. In P. Brodwin (Ed.), Biotechnology, culture,
and the body (pp. 224–237). Urbana: University of Indiana Press.
Joralemon, D. (2002). Reading futility: Anthropological reflections on a bioethical concept. Cambridge Quarterly of Health Care Ethics,
11, 112–114.
Kass, N. E. (2001). An ethics framework for public health. American
Journal of Public Health, 91, 1776–1782.
Kaufert, J. (1999). Cultural mediation in cancer diagnosis and end of life decision-making: The experience of Aboriginal patients in Canada. Anthropology and Medicine, 6, 405–421.
Kaufert, J., & O’Neil, J. (1990). Biomedical rituals and informed consent: Native Canadians and the negotiation of clinical trust. In G. Weisz (Ed.), Social science perspectives on medical ethics (pp. 41–64). Philadelphia: University of Pennsylvania Press. Kaufert, J., & Putsch, R. W. (1997). Communication through interpreters
in healthcare: Ethical dilemmas arising from differences in class, cul- ture, language, and power. The Journal of Clinical Ethics, 8, 71–87. Kaufert, P., & O’Neil, J. (1993). Analysis of a dialogue on risks in childbirth: Clinicians, epidemiologists, and Inuit women. In S. Lindenbaum & M. Lock (Eds.), Knowledge, power and prac-
tice: The anthropology of medicine and everyday life (pp. 32–54).
Berkeley: University of California Press.
Kelly, S. E., Marshall, P. A., Sanders, L. M., Raffin, T. A., & Koenig, B. A. (1997). Understanding the practice of ethics consultation: Results of an ethnographic multi-site study. Journal
of Clinical Ethics, 8, 136–149.
Kleinman, A. (1995a). Anthropology of bioethics. In Writing at the
margin: Discourse between anthropology and medicine (pp. 41–67).
Berkeley: University of California Press.
Kleinman, A. (1995b). Anthropology of medicine. In W. Reich (Ed.),
Encyclopedia of bioethics, (2nd ed., pp. 1667–1674). New York:
Macmillan.
Koenig, B. A., & Gates-Williams, J. (1995). Understanding cultural differences in caring for dying patients. Western Journal of
Medicine, 163, 244–249.
Koenig, B. A., Greely, H. T., McConnell, L. M., Silverberg, H. L., Raffin, T. A., & The Members of the Breast Cancer Working Group of The Stanford Program in Genomics, Ethics, and Society (1998). Genetic testing for BRCA1 and BRCA2: Recommendations of the Stanford program in genomics, ethics, and society. Journal of
Women’s Health, 7, 531–545.
Koenig, B. A., & Silverberg, H. L. (1999). Understanding probabilistic risk in predisposition genetic testing for Alzheimer disease.
Genetic Testing, 3, 55–63.
Kohn, T., & McKechnie, R. (Eds.). (1999). Extending the boundaries of
care: Medical ethics & caring practices. New York: Oxford
University Press.
Kuczewski, M., & Marshall, P. A. (2002). Decision dynamics in clini- cal research: The context and process of informed consent.
Medical Care, 40, V45–V54.
Kunstadter, P. (1980). Medical ethics in cross-cultural and multi- cultural perspective. Social Science and Medicine, 14B, 289–296. Lane, S. D. (1994). Research bioethics in Egypt. In R. Gillon (Ed.),
Principles of health care ethics (pp. 885–894). Chichester, UK:
Wiley.
Lane, S. D., & Rubinstein, R. A. (1996). Judging the other: Responding to traditional female genital surgeries. Hastings Center Report,
26, 31–40.
Lee, S. S. J., Mountain, J., & Koenig, B. A. (2001). The meanings of “race” in the new genomics: Implications for health disparities research. Yale Journal of Health Policy, Law, and Ethics, 1, 33–75. Levin, B. W. (1985). Consensus and controversy in the treatment of cat- astrophically ill newborns: Report of a survey. In T. H. Murray & A. L. Caplan (Eds.), Which babies shall live? Humanistic dimen-
sions of the care of imperiled newborns (pp. 169–205). Clifton, NJ:
Humana Press.
Levin, B. W. (1988). The cultural context of decision making for catastrophically ill newborns: The case of baby Jane Doe. In K. L. Michaelson (Ed.), Childbirth in America: Anthropological
perspectives (pp. 178–193). South Hadley, MA: Bergin & Garvey.
Levin, B. W. (1989). Decision making about care of catastrophically ill newborns: The use of technological criteria. In L. M. Whiteford & M. L. Poland (Eds.), New approaches to human reproduction: Social
and ethical dimensions (pp. 84–97). Boulder, CO: Westview Press.
Levin, B. W. (1990). International perspectives on treatment choice in neonatal intensive care units. Social Science and Medicine,
30, 901–912.
Levin, B. W., & Fleischman, A. R. (2002). Public health and bioethics: The benefits of collaboration. American Journal of Public Health,
92, 165–167.
Levin, B. W., & Schiller, N. G. (1998). Social class and medical decisionmaking: A neglected topic in bioethics. Cambridge
Quarterly of Healthcare Ethics, 7, 41–56.
Lieban, R. W. (1990). Medical anthropology and the comparative study of medical ethics. In G. Weisz (Ed.), Social science perspectives
on medical ethics (pp. 221–240). Philadelphia: University of
Pennsylvania Press.
Lock, M. (1995). Contesting the natural in Japan: Moral dilemmas and technologies of dying. Culture, Medicine and Psychiatry, 19, 1–38. Lock, M. (1996). Deadly disputes: Ideologies and brain death in Japan. In S. Youngner, R. Fox, & L. O’Connell (Eds.), Organ transplan-
tation: Meanings and realities (pp. 142–167). Madison: University
of Wisconsin Press.
Lock, M. (2002). Twice dead: Organ transplants and the reinvention of
death. Berkeley: University of California Press.
Lock, M., & Honde, C. (1990). Reaching consensus about death: Heart transplants and cultural identity in Japan. In G. Weisz (Ed.), Social
science perspectives on medical ethics (pp. 99–120). Philadelphia:
University of Pennsylvania Press.
Lock, M., Young, A., & Cambrosio, A. (Eds.). (2000). Living and
working with the new medical technologies: Intersections of inquiry. New York: Cambridge University Press.
Long, S. O. (1999). Family surrogacy and cancer disclosure: Physician- family negotiation of an ethical dilemma in Japan. Journal of
Palliative Care, 15, 31–42.
Long, S. O. (2000a). Living poorly or dying well: Decisions about life support and treatment termination for American and Japanese patients. Journal of Clinical Ethics, 11, 236–250.
Long, S. O. (2000b). Public passages, personal passages, and reluctant passages: Notes on investigating cancer disclosure practices in Japan. Journal of Medical Humanities, 21, 3–13.
Long, S. O. (2001). Ancestors, computers, and other mixed messages: Ambiguity and euthanasia in Japan. Cambridge Quarterly for
Healthcare Ethics, 10, 62–71.
Long, S. O., & Chihara, S. (2000). Difficult choices: Policy and meaning in Japanese hospice practice. In S. O. Long (Ed.), Caring
for the elderly in Japan and the US: Practices and policies
(pp. 146–171). New York: Routledge.
Marshall, P. A. (1992). Anthropology and bioethics. Medical
Anthropology Quarterly, 6, 49–73.
Marshall, P. A. (1996). Boundary crossings: Gender and power in clinical ethics consultations. In C. F. Sargent & C. B. Brettell (Eds.), Gender and health: An international perspective (pp. 205–226). Upper Saddle River, NJ: Prentice Hall.
Marshall, P. A. (2001). The relevance of culture for informed consent in U.S.-funded international health research. In National Bioethics Advisory Commission, Ethical and policy issues in international
research: Clinical trials in developing countries, Vol. 2. Bethesda,
MD: National Bioethics Advisory Commission.
Marshall, P. A., & Daar, A. (2000). Ethical issues in human organ replacement: A case study from India. In L. M. Whiteford & L. Manderson (Eds.), Global health policy, local realities: The fal-
lacy of the level playing field (pp. 205–230). Boulder, CO: Lynne.
Marshall P. A., & Koenig, B. (1996). Bioethics and anthropology: Perspectives on culture, medicine, and morality. In C. F. Sargent & T. F. Johnson (Eds.), Medical anthropology: Contemporary theory
Marshall, P. A., & Koenig, B. (2001). Ethnographic methods. In J. Sugarman & D. Sulmasy (Eds.), Method in medical ethics (pp. 169–191). Washington, DC: Georgetown University Press. Marshall, P. A., Koenig, B. A., Barnes, D. M., & Davis, A. J. (1998).
Multiculturalism, bioethics, and end-of-life care: Case narratives of Latino cancer patients. In J. F. Monagle & D. C. Thomasma (Eds.), Health care ethics: Critical issues for the 21st century (pp. 421–431). Gaithersburg, MD: Aspen.
Marshall, P. A., & Rotimi C. (2001). Ethical challenges in community based research. American Journal of the Medical Sciences, 322, 259–263.
Marshall, P. A., Thomasma, D. C., & Bergsma, J. (1994). Intercultural reasoning: The challenge for international bioethics. Cambridge
Quarterly of Healthcare Ethics, 3, 321–328.
McBurney, C. (2001). A contextual approach to clinical ethics consul- tation: Plus ça change? In B. Hoffmaster (Ed.), Bioethics in social
context (pp. 180–198). Philadelphia, PA: Temple University Press.
Muller, J. H. (1992). Shades of blue: The negotiation of limited codes by medical residents. Social Science and Medicine, 34, 885–898. Muller, J. H. (1994). Anthropology, bioethics, and medicine: A provoca-
tive trilogy. Medical Anthropology Quarterly, 8, 448–467. Muller, J. H., & Desmond, B. (1992). Ethical dilemmas in a cross-
cultural context: A Chinese example. Western Journal of Medicine,
157, 323–327.
Muller, J. H., & Koenig, B. A. (1988). On the boundary of life and death: The definition of dying by medical residents. In M. Lock & D. Gordon (Eds.), Biomedicine examined (pp. 351–374). Dordrecht, The Netherlands: Kluwer Academic.
Myser, C. (2003). “Differences” from somewhere: The normality of whiteness in bioethics in the United States. American Journal of
Bioethics, 3, 1–11.
Nelson, R. M. (2000). The ventilator/baby as cyborg: A case study in technology and medical ethics. In P. Browdin (Ed.), Biotechnology,
culture, and the body (pp. 209–223). Urbana: University of Indiana.
Ohnuki-Tierney, E. (1994). Brain death and organ transplantation.
Current Anthropology, 35, 233–254.
Orfali, K. (2001). Étude comparative sur le rôle de la famille en réanimation néonatale en France et aux Etats-Unis. Rapport pour la Mission Interministerielle de Recherche et d’Études