Intervention
individually focused?) Details of adapted components CBT (CBI) Martinovic´ et al.,
200683
CBT (TAPS+ IBD) Reigada et al., 2015125 content designed to assist CYP with academic and social activities when physical symptoms present, as well as IBD management and reacting positively to pain. Parents encouraged to foster independence in the young person were added to the standard BOC intervention to specifically address the needs of CYP with T1DM. Added components: conflict resolution, related to IBD to improve cognitions and behaviours related to IBD. Includes information about IBD and techniques for coping with abdominal pain, identifying negative cognitions about IBD and eliciting and later reassessing the young person’s physical illness narrative (belief about how IBD influences their life)
DOI: 10.3310/hta23220 HEALTH TECHNOLOGY ASSESSMENT 2019 VOL. 23 NO. 22
© Queen’s Printer and Controller of HMSO 2019. This work was produced by Moore et al. under the terms of a commissioning contract issued by the Secretary of State for Health and Social Care. This issue may be freely reproduced for the purposes of private research and study and extracts (or indeed, the full report) may be included in professional journals provided that suitable acknowledgement is made and the reproduction is not associated with any form of advertising. Applications for commercial reproduction should be addressed to: NIHR Journals Library, National Institute for Health Research, Evaluation, Trials and Studies Coordinating Centre, Alpha House, University of Southampton Science Park, Southampton SO16 7NS, UK.
149
Intervention
individually focused?) Details of adapted components CBT (PASCET-PI) Szigethy et al.,
As above, but specifically states that the programme was‘tailored to a youth’s individual developmental stage’. This appears to be manifested in simplifying materials for 9–13 year olds– in the CBT group, ‘handouts and practice assignments were simplified;
pictures were used to illustrate concepts;
skills became part of games; and parents were involved after each individual session to review practice assignments’;
the control group received non-directive supportive therapy in which
‘conversations with participants [. . .]
were conducted during games, and parents were involved after each session to review their child’s progress’.
They also considered the delivery of CBT over the telephone when possible, as a response to the wide catchment area of participating families changing CYP’s response to chronic pain. Included thinking about pain differently and trying to accept it but not let it limit activities, and thus reduce avoidant behaviours
No Based on SSTP manual Parenting skills for CYP with
behavioural problems and a disability.
No Based on Triple P manual Standard Triple P. No diabetes mellitus-specific content
As with SSTP,131but with additional ACT exercises designed to improve parent coping with stress and improvement in psychological skills.
ACT contains no description of any content specifically related to having a young person with a LTC (cerebral palsy)
No content was adapted specifically to the LTC (ABI)
Palliative care (ACP)
Lyon et al., 2013123 No Structured delivery based on Lyon family-centred medical condition. In this study it was cancer, but could be any condition.
Remaining content not LTC specific would be different for other LTCs. In addition, the CYP determine their own intervention content to be on mental health, not LTC APPENDIX 5
NIHR Journals Library www.journalslibrary.nihr.ac.uk
150
Intervention
individually focused?) Details of adapted components Group play
Nothing to suggest that there is LTC-specific content
Group play therapy
Zareapour et al., 2009135
No Little detail, no manual Not enough detail, but sounds like generic play
As in Ashouri et al., 2013132
Relaxation Bignall et al.,
Relaxation Yang et al., 2004139 No All CYP listened to same audio tape to guide on diet plans, insulin injection and timing related to meals, etc. on LTC stressors, there is nothing to suggest that activities could not be carried out in samples with other LTCs Music therapy Bufalini 2009136 No All CYP go through the
same process, but choose/make their own music
Music therapy was arranged around a painful procedure for cancer. Could be applied for painful procedures related to other LTCs
Massage therapy Diego et al., 2001121
No Same intervention for all Although massage therapy was proposed to have physiological benefits for people infected with HIV (boosting immune function), the same massage could be delivered to CYP with other LTCs
Heart rate variability biofeedback
Yetwin 2011127 No Manualised protocol. No flexibility
Nothing to suggest that intervention could not be applied to other LTCs
Resistance training
Gordon 2010129 No All performed same exercises, but progressed in difficulty according to individual ability
General exercise programme set to a level appropriate for the participants
ACP, Advanced Care Planning; CBI, cognitive–behavioural intervention; PASCET, primary and secondary control enhancement therapy.
DOI: 10.3310/hta23220 HEALTH TECHNOLOGY ASSESSMENT 2019 VOL. 23 NO. 22
© Queen’s Printer and Controller of HMSO 2019. This work was produced by Moore et al. under the terms of a commissioning contract issued by the Secretary of State for Health and Social Care. This issue may be freely reproduced for the purposes of private research and study and extracts (or indeed, the full report) may be included in professional journals provided that suitable acknowledgement is made and the reproduction is not associated with any form of advertising. Applications for commercial reproduction should be addressed to: NIHR Journals Library, National Institute for Health Research, Evaluation, Trials and Studies Coordinating Centre, Alpha House, University of Southampton Science Park, Southampton SO16 7NS, UK.
151