Pasivos Financieros 1 Categorías de pasivos financieros

Sub-Goal: Strengthen health systems to support the delivery of quality health services

Measure FY Target Result

13.1: Increase the percentage of children with non-syndromic hearing loss entering school with developmentally appropriate language skills.1

(Baseline – FY 2004: 20% estimated)

(Outcome)

Out-Year

Target 85% (FY 2013) Jul 31, 2014

13.2: Increase the percentage of infants with hearing loss enrolled in early intervention before 6 months of age.1 (Baseline – FY 2004: 57%)

(Output)

Out-Year

Target 85% (FY 2013) Jul 31, 2014

13.III.A.1: Percentage of infants suspected of having a hearing loss with a confirmed diagnosis by 3 months of age. (Output) 2012 70% Mar 31, 2015 2011 60% Mar 31, 2014 2010 60% Mar 31, 2013 2009 40% Mar 31, 2012 2008 63% 68% (Target Exceeded) 2007 62% 66% (Target Exceeded) 13.III.A.2: Percentage of infants with a

suspected or confirmed hearing loss referred to an ongoing source of comprehensive health care (i.e. medical home). (Output) 2012 95% Dec 31, 2013 2011 95% Dec 31, 2012 2010 94% Dec 31, 2011 2009 N/A N/A2 2008 88% N/A2 2007 87% N/A2 13.III.A.3: Percentage of infants

screened for hearing loss prior to hospital discharge. (Output) 2012 98% Mar 31, 2015 2011 98% Mar 31, 2014 2010 98% Mar 31, 2013 2009 98% Mar 31, 2012 2008 98% 97%

(Target Not Met but Improved)

2007 97% 94%

(Target Not Met but Improved)

1_{This long-term measure does not have annual targets.}

2 _{Data are not available due to the timing of the Children with Special Health Care Needs Survey which is the data source for this measure.}

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Efficiency Measure FY Target Result

13.E: Increase the percentage of infants suspected of having hearing loss (based on the results of their newborn hearing screen) who receive a confirmed diagnosis by 3 months of age while maintaining a constant Federal expenditure. (Efficiency) 2012 70% Mar 31, 2015 2011 60% Mar 31, 2014 2010 60% Mar 31, 2013 2009 40% Mar 31, 2012 2008 63% 68% (Target Exceeded) 2007 62% 66% (Target Exceeded)

Measure Data Source Data Validation

13.1 13.2 13.III.A.1 13.III.A.3 13.E

For FY 2005, data collected from grantees by Utah State University, National Technical Resource Center, based on survey of all States. For FY 2006 and beyond, data obtained from the CDC Hearing Screening and Follow-up Survey.

Through 2005, data validated against annual progress reports submitted by States. For 2006 and subsequent years, data validated by CDC through ongoing communications with States.

13.III.A.2 Survey of Children with Special Health Care Needs by the Centers for Disease Control and Prevention (CDC).

Data validated by CDC.

INTRODUCTION

The performance measures of the Universal Newborn Hearing Screening program link to the HRSA goal of improving access to quality health care and services. Performance measure data are used by the program for quality improvement. A current strategy to improve performance is to shift program emphasis to reducing the number of children who are lost to documentation or lost to follow-up, thereby ensuring that more children receive the care they need.

DISCUSSION OF RESULTS AND TARGETS

Goal: Improve Access to Quality Health Care and Services

Sub-Goal: Strengthen health systems to support the delivery of quality health services

13.1. Increase the percentage of children with non-syndromic hearing loss entering school with developmentally appropriate language skills.

The FY 2013 target is 85%. Data are anticipated on July 2014.

13.2. Increase the percentage of infants with hearing loss enrolled in early intervention before 6 months of age.

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13.III.A.1. Percentage of infants suspected of having a hearing loss with a confirmed diagnosis by 3 months of age.

While major success has been achieved in screening infants for hearing loss before hospital discharge, those suspected of a hearing loss were receiving timely re-screening and diagnostic services only about 55% of the time, as reported for FY 2005. Many of the reasons, such as health provider information about hearing loss in infants, a dearth of audiologists capable of caring for infants, and inadequate data and tracking systems, have been identified and

mechanisms to address these problems are being developed and implemented. Results for this performance measure include an increase from 50% in FY 2004 to 55% in FY 2005. The actual result for this measure was 36% in FY 2006. This decrease is likely attributable to a change in data source for this measure. Previously data were collected by the National Center for Hearing Assessment and Management (NCHAM), the national resource center for the Universal

Newborn Hearing Screening and Intervention program. Annual data are now collected by the CDC which uses different definitions than NCHAM. Data from the CDC Hearing Screening and Follow-up Survey (HSFS) reflects data that states and territories have documented, allowing no estimates. In FY 2007, 66% of infants with a suspected hearing loss received a confirmed diagnosis by 3 months of age. In FY 2008, that percentage rose to 68%. The FY 2012 target is 70%.

13.III.A.2. Percentage of infants with a suspected or confirmed hearing loss referred to an ongoing source of comprehensive health care (i.e. medical home).

Limited research on health outcomes for Children with Special Health Care Needs (CSHCN) indicates that those children who are in a medical home fare better than those receiving health care in settings where there is no mechanism for care coordination. States are encouraged to identify a medical home for each infant suspected of a hearing loss, and to assist the medical home in assuring appropriate and timely follow-up for those infants and their families. A variety of tools have been developed in conjunction with the American Academy of Pediatrics (AAP) to support the medical home in caring for infants with a suspected (or confirmed) hearing loss and their families. Available data for 2005 indicate that 80% of infants with a suspected or

confirmed hearing loss were referred to an ongoing source of comprehensive care. In FY 2006, 94% were referred to an ongoing source of care, exceeding the target of 85%. The target is based on responses to the question: “Do you have one person you think of as child’s personal doctor or nurse?” from the National Survey of Children with Special Health Care Needs. Data for FY 2007 thru FY 2009 are not available since the Children with Special Health Care Needs Survey is only fielded every four years. The FY 2012 target is 95%.

13.III.A.3. Percentage of infants screened for hearing loss prior to hospital discharge. The number of infants receiving a physiologic screening test for hearing loss prior to discharge from the newborn nursery has increased dramatically over the past several years. In FY 2007, States reported that 94% of infants were screened. This was a decrease from 95% of infants screened in FY 2005. The decrease is a function of a change in data source. Data that were collected by the National Center for Hearing Assessment and Management (NCHAM) have been replaced by Center for Control and Prevention (CDC), whose definitions differ from NCHAM.

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NCHAM no longer collects national data on these items. Additional gains are to be achieved by focusing on infants born at home or in other out-of-hospital settings, transferred infants who require neonatal intensive care, and births in small hospitals where screener experience is

limited. For FY 2008, States reported that 97% of infants were screened. The FY 2012 target is 98%.

13.E. Increase the percentage of infants suspected of having hearing loss (based on the results of their newborn hearing screen) who receive a confirmed diagnosis by 3 months of age while maintaining a constant Federal expenditure.

Increasing the percentage of infants who receive a confirmed diagnosis by 3 months of age while maintaining a consistent level of Federal funding would indicate increased program efficiency. In FY 2005, 55% of infants who failed the screening test received a confirmed diagnosis by three months of age, as compared to 50% in FY 2004. In FY 2006 the figure was 36% possibly

reflecting a change in the data source. In FY 2007, 66% of infants who failed the screening test received a confirmed diagnosis by three months of age, indicating substantial improvement, while continuing to fall short of the target. In FY 2008, this number rose to 68%, exceeding the target. Annual data are now collected by the CDC which uses different definitions than

NCHAM, which previously collected the data. Data from the CDC Hearing Screening and Follow-up Survey reflects data that states and territories have documented, allowing no estimates. Future targets have been adjusted to reflect this change in data collection. The FY 2012 target is 70%.

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EMERGENCY MEDICAL SERVICES FOR CHILDREN

Goal: Improve Access to Quality Health Care and Services

Sub-Goal: Strengthen health systems to support the delivery of quality health services

Measure FY Target Result

14.1: Mortality rate for children with an injury severity score (ISS) greater than 15. (Baseline – FY 2005: 9.1%)

(Outcome)

Out-Year

Target 8.1% (FY 2014) July 31, 2016 2012 8.4% July 31, 2014

2011 8.5% July 31, 2013

2010 8.6% July 31, 2012

2009 8.7% July 31, 2011

14.V.B.1: Increase the number of awardees that demonstrate the operational capacity to provide pediatric emergency care, including all core capacity elements related to: (a) on- line and off-line medical direction at the scene of an emergency for Basic Life Support (BLS) and Advanced Life Support providers, (b) essential pediatric equipment and supplies, (c) designation of pediatric specialty care hospitals, and inter-facility transfer agreements. (Baseline – FY 2005: 20) (Output) 2012 30 July 31, 2013 2011 28 July 31, 2012 2010 26 July 31, 2011 2009 24 26 (Target Exceeded) 2008 21 23 (Target Exceeded) 2007 28 22

(Target Not Met but Improved)

14.V.B.2: Increase the number of awardees that have adopted requirements for pediatric emergency education for the re-certification of paramedics. (Output) 2012 39 July 31, 2013 2011 373 July 31, 2012 2010 27 July 31, 2011 2009 25 37 (Target Exceeded) 2008 22 24 (Target Exceeded) 2007 43 23

(Target Not Met but Improved) 14.V.B.3: Transfer rate for children with an

injury severity score (ISS) of 15 or more.4

2012 (Developmental) (Output) TBD TBD 2011 N/A N/A 2010 N/A N/A 2009 N/A TBD (Baseline)

3 _{Target differs from that shown in the FY 2011 Congressional Justification to reflect most recent performance.}

4 _{This developmental measure does not currently have annual targets. Baseline data for FY 2009 will be available in 2011 when the 2012 target}