El Sistema Nacional tendrá las siguientes facultades:

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TRANSITION SERVICES INCLUDING SELF-ADVOCACY AND SKILL DEVELOPMENT

Transition services for youth and young adults enrolled in CSHCN were continued as a high priority during CY 2004. During this period, 1,256 transition services were provided to youth, ages 14, 16, 18 and 20 years. Training of nurses and social workers about adolescent transition services was continued through the periodic nurse/social worker staff meetings.

Written policy concerning delivery of adolescent transition services was expanded in the revised CSHCN Policy and Procedure Manual released to staff in April 2004. The transition screening tools were developed for use with adolescents ages 14, 16, and 17, and with young adults ages 18 and 20. These were also included in the manual with the expanded policy. This policy places a higher priority than previously on home and other face-to-face contacts for development of Patient/Family Care Plans for youth in transition.

Percentage of youth with special care needs who receive services necessary to make transition to all aspects of adult life.

• The U.S. Census 2000 cites 234,000 persons with disabilities, age 21-64, live in West Virginia. Only 32% are employed compared to 73.4% of persons without disabilities.

• Social Security Administration reports that approximately 3% of SSI recipients with disabilities in West Virginia work. This is one of the lowest percentages in the U.S.

• 2003 Social Security data for West Virginia indicated that over 72,000 workers with disabilities are receiving SSDI.

• 2003 Social Security data for West Virginia indicated that there are over 54,000 SSI recipients aged 18-64.

• If 1% of SSI and SSDI beneficiaries nationwide were to become employed, federal savings in disability benefits would total $3.5 billion over the lifetime of the beneficiaries.

• A 2000 Harris Poll found that two of three people with disabilities preferred to be working.

Transition services are provided by CSHCN to all program participants.

• CSHCN nurses and social workers receive training in provision of adolescent transition services.

• Adolescent Transition Screening Tools were developed for use in care coordination with adolescents and young adults.

• CSHCN expanded services to the adolescent population, including transition services for youth 14 to 21 years.

• During CY 2004, 1,755 Patient Care Plans were completed to assure a continuum of comprehensive medical care and transition to adult care as appropriate.

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Transition services for youth and young adults enrolled in CSHCN were continued as a high priority during CY 2004. During this period, 1,256 transition services were provided to youth, ages 14, 16, 18 and 20 years. Training of nurses and social workers about adolescent transition services was continued through the periodic nurse/social worker staff meetings. Written policy concerning delivery of adolescent transition services was expanded in the revised CSHCN Policy and Procedure Manual released to staff in April 2004. Transition screening tools were developed for use with adolescents ages 14, 16, and 17, and with young adults ages 18 and 20. These were also included in the manual with the expanded policy. This policy places a higher priority than previously on home and other face-to-face contacts for development of Patient/Family Care Plans for youth in transition.

In December 2004, CSHCN was awarded a Champions for Progress Incentive Grant for the purpose of expanding the program’s transition services for youth and young adults. However, reorganization and staffing changes of CSHCN made continuation of the project unfeasible before implementation began on the project.

Therefore, the request for funding was withdrawn.

Preparing students with disabilities for independent living skills is a goal of CSHCN. We do this in a variety of ways including partnership with the Division of Rehabilitation Services. The West Virginia Division of Rehabilitation Services offers school to work transition services for students with disabilities. Cooperative agreements between the Division of Rehabilitation Services, all fifty-five county school systems, the State Board of Education, and the School for the Deaf and Blind enabled 6,278 school students with disabilities to receive these services in FY 2002.

The West Virginia Birth to Three Transition Exit Survey was developed as a collaborative effort of WV Birth to Three, West Virginia Department of Education, Head Start, and Child Care. The survey is designed to address monitoring priorities of the U.S. Department of Education and provide information for improvement of family and child outcomes. Survey questions ask about the outcome of the child/family’s transition;

whether Part C services helped the family to meet their child’s developmental needs;

promoted the child’s participation in daily routines; and helped to promote the child’s development across developmental domains.

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Birth to Three Transition Survey Results (January through June 2004)

Child / Family had help with transition

Percentage

% %

% %

%

Capacity to Address Needs:

Support for transition services requires a financial and human resource commitment. The Division of Rehabilitation Services has, at present, 59 rehabilitation counselors to work with public schools, with 34 of 59 serving local education agencies full time. These counselors support students with transition from high school to appropriate vocational training, post-secondary education or employment.

With careful planning, the affected student “at the helm” and the involvement of families and school personnel, rehabilitation counselors developed 1,438 Individualized Family Service Plans for employment in FY 2002.

The Division of Rehabilitation Services works well with CSHCN to assure youth have ample opportunity for life transition plans. In addition, the West Virginia Division of Rehabilitation Services has a contract with the Social Security Administration, the Disability Determination Service Section (SSDI) responsible for handling Supplemental Security Income (SSI) disability applications filed by West Virginians. During Fiscal Year 2003, DDS processed 50,968 claims and had an overall accuracy rate of 92.7% for initial claims, which exceeds the Social Security Administration’s threshold for performance of 90.6%. DDS’s enhanced ability to provide citizens with disabilities more timely determination is of importance to West Virginia children with disabilities, especially those in MCFH programming (Part C/BTT and CSHCN) who receive expedited case handling based on a working relationship agreement between the two agencies.

As a result of the 1999 federal Ticket to Work legislation funded by the Social Security Administration, there is support for consumers receiving SSDI or SSI that want to work, called Benefits Planning, Assistance and Outreach Program (BPAO).

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This unit serves as a resource for adult service transitioning for participants in CSHCN, especially since 80% of those served are Medicaid beneficiaries. Finding employment is not always easy for persons with a disability.

• The WORKFORCE West Virginia Career Centers and their partners provide a variety of employment-related services to the residents of West Virginia.

Historically, opportunities for persons with disabilities had been few.

• Department of Labor funding has been provided to support community-based rehabilitation services for persons with disabilities and to enhance assistive technology capabilities.

• Community-based rehabilitative services provide vocational employment opportunities to address self-sufficiency.

• Persons needing special supports to transition to inclusive community living can be referred to Golden Rule, which pairs the individual with a golden retriever. The dogs are part of a training program offered by the Monongalia County Alternative Learning School. This creates an additional bonus in that school students learn and practice skills consistent with effective parenting.

• The Specialized Family Care Program (SFCP) is a statewide placement and family support system designed to serve the needs of children and adults with developmental disabilities who cannot live independently by:

• Providing 24 hour, day-to-day care, support, training, and supervision to persons with developmental disabilities;

• Including persons with developmental disabilities in family and community activities;

• Participating in program planning to best address the needs of persons with developmental disabilities;

• Receiving ongoing training, respite services, and financial support;

• Agreeing to monthly monitoring and annual certification standards;

and

• Receiving personal satisfaction from having an individual grow to his/her maximum potential.

This program is an interagency collaboration between the West Virginia Department of Health and Human Resources and the Center for Excellence in Disabilities at West Virginia University, a part of Robert C. Byrd Health Sciences Center.

The SFCP is funded under an agreement with the West Virginia Department of Health and Human Resources, Bureau for Children and Families.

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The West Virginia Centers for Independent Living (WVCIL) is charged with assisting persons with disabilities to maintain independence. Their services for persons with disabilities include:

• Home modifications such as grab bars, widening doors, and building ramps;

• Medical equipment like wheelchairs, scooters, and shower chairs;

• Assistive technology to include eye glasses, phone amplifiers, communication devices ; and

• Vehicle modifications like hand controls.

The above services are provided under a grant agreement from the WV Division of Rehabilitation Services. In FY 2004, 233 persons participated in the program, while another 703 individuals are on waiting lists. This unmet need has been brought to the attention of the State Legislature, explaining that keeping people in their homes costs an average of $1,702 per person, which represented an institutional savings of nearly $16 million.

Since 74% of the persons served in FY 2004 were seniors, the Council is expanding its outreach efforts to youth by hosting the first West Virginia Youth Disability Caucus, July 29 – August 1, 2005. This four day leadership forum is open to youth with all types of disabilities, ages 16-21 years of age.

The participants or “delegates” at the Youth Caucus will have a unique opportunity to develop leadership skills, connect with mentors, learn about the disability rights movement, learn about the legislative process, make friends, and learn how they can make a difference in their communities.

Youth Caucus delegates will be preparing to become the new leaders in our state and the disability community. Activities include sessions with national speakers, small group activities, a dance, and a mock legislative session in the House Chamber at the State Capitol.

Financial support and identification of youth is occurring throughout the disability community including the CSHCN network.

Total public school enrollment continued to decline from 281,591 in 2002 to 280,561 in 2003, a decline of 1,030 or 0.36 percent. Statewide, 18% of the total West Virginia school enrollment was served in special education in 2003. This includes the West Virginia School for the Deaf and Blind and the Office of Institutional Education Program. This represents an increase of 329 students from 2002 or 0.7%. See reference to Deaf and Hard of Hearing.

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Percentage of West Virginia Students with Disabilities, Ages 6-21 In the Least Restrictive Environment

December 1, 2003

Percentage in Each Placement Within Area of Disability

Area of Disability A B C D E F G H

Autism 33.53% 25.25% 39.45% 0.79% 0.00% 0.00% 0.20% 0.79%

Behavior Disorders 36.51% 34.85% 22.09% 0.04% 0.13% 0.36% 3.01% 3.01%

Speech/Language Impairments

98.77% 0.99% 0.17% 0.00% 0.00% 0.00% 0.00% 0.06%

Deaf/Blind 5.00% 5.00% 0.00% 10.00% 0.00% 80.00% 0.00% 0.00%

Deaf/Hard of Hearing

52.58% 25.06% 3.44% 1.23% 0.00% 17.20% 0.25% 0.25%

Specific Learning Disabilities

46.49% 48.89% 3.73% 0.01% 0.02% 0.05% 0.25% 0.56%

Moderate Mentally Impaired

0.95% 13.96% 82.82% .48% 0.00% 0.00% 0.12% 1.67%

Mild Mentally Impaired

10.63% 63.01% 25.11% 0.00% 0.01% 0.01% 0.48% 0.75%

Profound Mentally

41.85% 48.35% 8.33% 0.03% 0.06% 0.03% 0.17% 1.19%

Orthopedically Impaired

67.38% 20.32% 10.16% 0.53% 0.00% 0.00% 0.00% 1.60%

Traumatic Brain Injuries

57.63% 27.97% 8.47% 0.00% 0.00% 0.00% 0.00% 5.93%

Blind & Partially

Sighted 55.61% 14.80% 2.24% 9.42% 0.00% 17.49% 0.00% 0.45%

Total 50.85% 37.23% 10.38% 0.10% 0.02% 0.32% 0.35% 0.75%

Continuum of Placements in the Least Restrictive Environment A = Regular Education: Full Time (0-20% Special Education) B = Regular Education: Part Time (21-60% Special Education) C = Special Education: Separate Class

D = Special Education: Special School (Public) E = Special Education: Special School (Private) F = Public Residential Facility

G = Private Residential Facility

H = Homebound/Hospital Environment

Source: Exceptional Students in West Virginia’s County School Districts Office of Special Education, West Virginia Department of Education Fiscal Year 2004

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138 Self -Determination

Self-Determination focuses on how people with disabilities live their own lives.

Personal choice and control are the cornerstones of the self determination movement.

Persons with disabilities control how public funds for services and supports are spent.

In West Virginia, almost everyone who has a disability and relies on public money to fund their services and supports are required to conform to sets of government and provide dictated rules and regulations. Services are controlled by these entities with the individuals having little choice in the types of supports they receive.

Increasingly, people with disabilities and their families are saying that the “one-size-fits-all” method of service provision is inadequate. The system should, instead, strive to meet each individual’s needs. Individuals want to set and pursue their own goals. They want to live in the place and type of housing they choose, obtain competitive employment and take responsibility for the money they spend while making a contribution back to their communities. They want to live their own lives and make their own choices, just as people without disabilities do every day.

Capacity to Address Needs:

The WV Self-Determination Initiative is comprised of a group of individuals and organizations dedicated to instilling the philosophy of self-determination for people with disabilities into the mainstream of life in West Virginia.

The long term objective of the Initiative is to help assure freedom and real choice for all individuals with disabilities, and give them the authority over the resources they need, both monetary and otherwise, to live full and productive lives in the communities of their choice. The Initiative strives to create a unified voice in the disability community to eliminate institutional bias and bad practice, and replace it with a consumer directed care system.

The Initiative will work to help increase the sense of personal power for people with disabilities by giving individuals direct, personalized control over the services they receive and the budget used to purchase those services. By shifting the power from agencies and providers to the individual, people with disabilities will finally be afforded the same civil rights that those without disabilities enjoy.

One-day training sessions are being offered by the WV Developmental Disabilities Council and the Center for Self-Determination throughout the State. The sessions are scheduled for June, 2005 and teens are strongly encouraged to participate, as a part of the adolescent to adulthood transition effort.

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DD Council – Center for Self-Determination Training Locations, as of 6/05 Mountaineer Camp

The OMCFH also encourages youth with disabilities to participate in the Mountaineer Camp designed to help children and teens develop self esteem, social skills and self reliance while they participate in recreational and social activities.

Mountaineer Camp was established in 1985 and is operated by Mountaineer Spina Bifida Camp, Inc., a private, non-profit organization. Mountaineer Camp activities are geared toward camper participation. Camp nurses and physicians are present to help campers with their medical needs and camp counselors assist with daily living activities and participation activities. Camp counselors are recruited from WV colleges and high schools, and receive training to prepare them for Mountaineer Camp.

All funding for Mountaineer Camp comes from donations, grants, and fund-raising. Campers’ families are required to pay a small percentage of the cost of their child’s week of camp, to help cover the expenses of meals and lodging.

Mountaineer Camp is one of only a few camps in the U.S.A. designed specifically to meet the needs of youth who have spina bifida or myelodysplasia. The Office of Maternal, Child and Family Health is pleased to be a camp sponsor and supports the camp by providing nurses from the Children with Special Health Care Needs Program.

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D. CAPACITY

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West Virginia-Office of Maternal, Child and Family Health Services Core Functions Schema

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Capacity Assessment Across MCH Essential Services West Virginia – Maternal, Child and Family Health

DIRECT SERVICES

In document LEY GENERAL DE MOVILIDAD Y SEGURIDAD VIAL (página 31-37)