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PEIMS Database 10/29/04

Categories are not mutually exclusive

87 1,318 97 131 2,004 258 698 12,807 0 2000 4000 6000 8000 10000 12000 14000 ORTHOPEDIC IMPAIRMENT OTHER HEALTH IMPAIRMENT AUDITORY IMPAIRMENT VISUAL IMPAIRMENT MENTAL RETARDATION EMOTIONAL DISTURBANCE LEARNING DISABILITY SPEECH IMPAIRMENT

Data from the CARE Database

The Client Assignment and Registration (CARE) System registers and tracks

individuals receiving services from Texas Health and Human Services Commission (HHSC) through the mental health and mental retardation service delivery system. The database is used as the common information system to record, collect, and generate reports concerning services and supports provided for people with disabilities within this system. A central mainframe CARE system database is the operational repository for statewide individual information. A separate Consumer Analysis Data Warehouse contains completed and static operational information for reporting purposes. (Willetta Stevenson-Leach, personal communication). For purposes of this report, a file was created that included all individuals who had been diagnosed with an ASD, using DSM criteria, between October 1999 and August 1, 2005.

When interpreting these data, it is important to remember that they reflect an unduplicated count of individuals recorded in the CARE system who received services between October 1, 1999 and August 1, 2005. It does not include individuals on interest lists, or individuals who receive private mental health/mental retardation services. Texas was in the process of combining mental retardation services with other health and human

services at the time of this report, and the agency databases were not fully integrated. Therefore, the numbers shown here represent only persons served by an MRA during the defined period of time. Because the CARE database was not integrated with other agency databases, information about clients who have an ASD and have received services through another agency are not included in the CARE database, and thus not included in this count.

What is the prevalence of ASD by geographic region in Texas?

Between October 1, 1999 and August 1, 2005, 5,664 individuals were listed with an ASD as their latest diagnosis in the CARE database. The largest numbers of individuals were found concentrated in Harris County (n=1374), Dallas Metro Care (n=497), Tarrant County (n=481) and the Center for Health Care Services in San Antonio (n=468). These four sites account for approximately half the cases in the system. (Note: Those individuals who were located out-of-state, deceased or whose latest county of residence was unknown were eliminated from this analysis.) The following table ranks the Mental Health/Mental Retardation (MHMR) centers from those with the lowest numbers of individuals to the highest. In interpreting this data, it is important to remember that most of the MHMR

centers serve multiple counties in the state; all 254 counties of Texas are served by one of these centers. The chart identifies the city where the MHMR center is headquartered; however, the offices may not be centrally located in a very large catchment area. While it is not surprising that the MHMR centers in larger metropolitan areas served greater numbers of individuals with ASDs, it is interesting that 15 centers served fewer than 50 individuals over the six year period in question. To provide a perspective on the total population served by the catchment areas of the MHMR centers, the total number of people served between September 1, 2004 and August 31, 2005 is provided. It is important to remember, however, that the number of individuals with ASDs reported in the chart is the total number served between October 1, 1999 and August 1, 2005.

Table 2. Individuals with a diagnosis of an Autism Spectrum Disorder who Received Services from the Texas Health and Human Services Commission from October 1999 through August of 2005

# of Clients Total # of

Community Centers (headquartered in) w/ASD

Served

Clients Served 9/1/04-

10/99-8/05 8/31/05

Central Plains Center (Plainview) 10 164

Camino Real Community MHMR Center (Lytle) 35 166

Gulf Bend MHMR Center (Victoria) 14 198

MHMR Services of Texoma (Sherman) 28 199

Northeast Texas MHMR Center (Texarkana) 23 219

ACCESS (Jacksonville) 21 245

Border Region MHMR (Laredo) 51 294

Pecan Valley MHMR Region (Stephenville) 41 302

Coastal Plains Community MHMR Center (Portland) 37 341 Central Counties Center for MHMR Services (Temple) 66 348

The Center for Life Resource (Brownwood) 0 365

Lifepath Systems (McKinney) 52 393

West Texas Centers for MHMR (Big Spring) 28 399

Helen Farabee Regional MHMR Center (Wichita Falls) 35 429 Permian Basin Community Centers for MHMR (Midland) 34 451

Tri-County MHMR Services (Conroe) 98 451

Andrews Center (Tyler) 73 458

Gulf Coast Center (Galveston) 82 550

Sabine Valley Center (Longview) 80 594

Lakes Regional MHMR Center (Terrell) 73 620

Texas Panhandle MHMR (Amarillo) 55 719

MHMRA of Brazos Valley (Bryan) 48 729

MHMR Services for the Concho Valley (San Angelo) 36 755

Tropical Texas Center for MHMR (Edinburg) 216 780

Spindletop MHMR Services (Beaumont) 148 909

Hill Country Community MHMR Center (Kerrville) 135 939

El Paso Community MHMR Center (El Paso) 195 965

Burke Center (Lufkin) 70 1,043

MHMR Center of Nueces County (Corpus Christi) 98 1,046

Betty Hardwick Center (Abilene) 43 1,046

Heart of Texas Region MHMR Center (Waco) 81 1,109

Bluebonnet Trails Community MHMR Center (Round Rock) 164 1,135

Lubbock Regional MHMR Center (Lubbock) 67 1,197

Denton County MHMR Center (Denton) 83 1,362

Texana MHMR Center (Rosenberg) 214 1,489

Austin-Travis County MHMR Center (Austin) 252 1,717

Dallas MetroCare Services (Dallas) 497 2,405

MHMR of Tarrant County (Fort Worth) 481 2,487

Center for Health Care Services (San Antonio) 468 2,767 MHMR Authority of Harris County (Houston) 1,374 3,456

TOTAL 5,664 35,922

What are the differences in ASD prevalence by gender?

Seventy-seven percent of the individuals identified with an ASD diagnosiswere male and 23% were female.

Figure 14 Gender Care Database N = 5664 77% 23% Male Female

What are the differences in ASD prevalence by race/ethnicity?

Half of those diagnosed with autism in the CARE system were non-Hispanic Whites. One fourth was Hispanic, 18% were African-American and the remaining 6% were other ethnic/racial groups.

Table 3. Race/Ethnicity of Individuals with an ASD Diagnosis in the CARE System

Race/Ethnicity Percent of individuals with

an Diagnosis of ASD Percent of All Texans

Asian 2.6 2.7 Black 18.3 11.5 Hispanic 25.8 32.0 Indian 0.1 0.6 Non-Hispanic White 49.9 39.0 Other 3.1 14.2 Data for all Texans taken from the 2000 Census at http://quickfacts.census.gov

What are the differences in ASD prevalence by type of services received or interest list status?

Community MHMR centers are locally staffed and governed by a local board of trustees. The centers are responsible for the provision of a wide range of services as a condition for receiving state funds. These services include case management, emergency services, medical treatment, and respite care. Other services that may be provided are work- related activities including vocational training, vocational assessments, sheltered workshops, supported work programs, and job placement. Short-term and long-term residential care and developmental programs may also be a part of services. Eighty-three percent of individuals with an ASD diagnosis received services from a MHMR center. Forty-five percent received Medicaid-funded Mental Health/Mental Retardation case management or Mental Health rehabilitation services through a MHMR center. Less than 10% were listed in other programs. Only 6 % were served in state operated mental retardation facilities, 4% in state operated mental health facilities and 8% in a community Intermediate Care Facility/Mental

currently enrolled or on the interest list for mental retardation services.

The interest lists consist of applicants for community-based services through the Community-Based Alternatives (CBA) program, Community Living Assistance and Support Services (CLASS) program, Deaf/Blind with Multiple Disabilities (DB/MD) program, Home and Community Services (HCS) program, and the Medically Dependent Children’s Program (MDCP). These individuals have not been determined to be eligible for services, but as funding is increased to serve more people in these programs, eligibility is determined and applicants are enrolled.

Figure 15.