Investigaciones sobre educación inclusiva

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5. Chiu, T.Y., et al., Terminal cancer patients' wishes and influencing factors toward the provision of artificial nutrition and hydration in Taiwan. J Pain Symptom Manage, 2004. 27(3): p. 206-14.

6. Ehrsson, Y.T., et al., Percutaneous endoscopic gastrostomy (PEG) - a long- term follow-up study in head and neck cancer patients. Clin Otolaryngol Allied Sci, 2004. 29(6): p. 740-6.

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9. Geppert, C.M., M.R. Andrews, and M.E. Druyan, Ethical issues in artificial nutrition and hydration: a review. JPEN J Parenter Enteral Nutr, 2010. 34(1): p. 79-88.

10. Morita, T., et al., Perceptions and decision-making on rehydration of terminally ill cancer patients and family members. Am J Hosp Palliat Care, 1999. 16(3): p. 509-16.

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13. Fainsinger, R.L., et al., The use of hypodermoclysis for rehydration in terminally ill cancer patients. J Pain Symptom Manage, 1994. 9(5): p. 298-302. 14. de Stoutz, N.D., M. Tapper, and R.L. Fainsinger, Reversible delirium in

terminally ill patients. J Pain Symptom Manage, 1995. 10(3): p. 249-53.

15. Van der Riet, P., D. Brooks, and M. Ashby, Nutrition and hydration at the end of life: pilot study of a palliative care experience. J Law Med, 2006. 14(2): p. 182-98.

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17. Zerwekh, J.V., Do dying patients really need i.v. fluids? Am J Nurs, 1997. 97(3): p. 26-30; quiz 31.

18. Morita, T., et al., Physician- and nurse-reported effects of intravenous hydration therapy on symptoms of terminally ill patients with cancer. J Palliat Med, 2004. 7(5): p. 683-93.

20. Solomon, M.Z., et al., Decisions near the end of life: professional views on life- sustaining treatments. Am J Public Health, 1993. 83(1): p. 14-23.

21. Hoppe, J.-D., Grundsätze der Bundesärztekammer zur ärztlichen Sterbebegleitung. Deutsches Ärzteblatt, 2011. Jg.108 Heft 7(.): p. 3.

22. Silvestri, G.A., et al., Importance of faith on medical decisions regarding cancer care. J Clin Oncol, 2003. 21(7): p. 1379-82.

23. Balboni, T.A., et al., Religiousness and spiritual support among advanced cancer patients and associations with end-of-life treatment preferences and quality of life. J Clin Oncol, 2007. 25(5): p. 555-60.

24. Jox, R.J., H.J. Hessler, and G.D. Borasio, [End-of-life decisions, powers of attorney, and advance directives]. Nervenarzt, 2008. 79(6): p. 729-37; quiz 738-9.

25. Lang, F.R. and G.G. Wagner, [Patient living wills in Germany: conditions for their increase and reasons for refusal]. Dtsch Med Wochenschr, 2007. 132(48): p. 2558-62.

26. Bühl, A. and P. Zöfel, SPSS 12

Einführung in die moderne Datenanalyse unter Windows. 9., Überarb. und erw. Aufl. ed, München: Pearson Studium. 744 S.

27. Johnson, K.S., K.I. Elbert-Avila, and J.A. Tulsky, The influence of spiritual beliefs and practices on the treatment preferences of African Americans: a review of the literature. J Am Geriatr Soc, 2005. 53(4): p. 711-9.

28. Phelps, A.C., et al., Religious coping and use of intensive life-prolonging care near death in patients with advanced cancer. Jama, 2009. 301(11): p. 1140-7. 29. Jox RJ, K.M., Fegg M, Reiter-Theil S, Frey L, Eisenmenger W, Borasio GD.,

Limiting life-sustaining treatment in German intensive care units: A multiprofessional survey. Journal of Critical Care, 2009 Aug 12. : p. 7.

30. Winzelberg, G.S., L.C. Hanson, and J.A. Tulsky, Beyond autonomy: diversifying end-of-life decision-making approaches to serve patients and families. J Am Geriatr Soc, 2005. 53(6): p. 1046-50.

31. Casarett, D., J. Kapo, and A. Caplan, Appropriate use of artificial nutrition and hydration--fundamental principles and recommendations. N Engl J Med, 2005. 353(24): p. 2607-12.

32. Lang, F. and T. Quill, Making decisions with families at the end of life. Am Fam Physician, 2004. 70(4): p. 719-23.

33. Ho, A., Relational autonomy or undue pressure? Family's role in medical decision-making. Scand J Caring Sci, 2008. 22(1): p. 128-35.

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35. Benbenishty, J., et al., Nurse involvement in end-of-life decision making: the ETHICUS Study. Intensive Care Med, 2006. 32(1): p. 129-32.

36. Bryon, E., C. Gastmans, and B.D. de Casterle, Decision-making about artificial feeding in end-of-life care: literature review. J Adv Nurs, 2008. 63(1): p. 2-14. 37. Tuttas, C.A., The facts of end-of-life care. J Nurs Care Qual, 2002. 16(2): p.

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38. Spronk, P.E., et al., The practice of and documentation on withholding and withdrawing life support: a retrospective study in two Dutch intensive care units. Anesth Analg, 2009. 109(3): p. 841-6.

39. Kirchhoff, K.T., et al., Documentation on withdrawal of life support in adult patients in the intensive care unit. Am J Crit Care, 2004. 13(4): p. 328-34.

40. Sprung, C.L., et al., Reasons, considerations, difficulties and documentation of end-of-life decisions in European intensive care units: the ETHICUS Study. Intensive Care Med, 2008. 34(2): p. 271-7.

41. Morrison, R.S., et al., The effect of a social work intervention to enhance advance care planning documentation in the nursing home. J Am Geriatr Soc, 2005. 53(2): p. 290-4.

42. Emanuel, L.L., et al., What terminally ill patients care about: toward a validated construct of patients' perspectives. J Palliat Med, 2000. 3(4): p. 419-31.

43. DesHarnais, S., et al., Lack of concordance between physician and patient: reports on end-of-life care discussions. J Palliat Med, 2007. 10(3): p. 728-40. 44. Gillick, M.R., The use of advance care planning to guide decisions about

artificial nutrition and hydration. Nutr Clin Pract, 2006. 21(2): p. 126-33.

45. Teno, J., et al., Advance directives for seriously ill hospitalized patients: effectiveness with the patient self-determination act and the SUPPORT intervention. SUPPORT Investigators. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatment. J Am Geriatr Soc, 1997. 45(4): p. 500-7.

46. Silveira, M.J., S.Y. Kim, and K.M. Langa, Advance directives and outcomes of surrogate decision making before death. N Engl J Med, 2010. 362(13): p. 1211-8.

47. Bergman-Evans, B., et al., Uncovering beliefs and barriers: staff attitudes related to advance directives. Am J Hosp Palliat Care, 2008. 25(5): p. 347-53. 48. Borasio, G.D., Grauvogel, S., Hell, W. et al.,, Künstliche Ernährung und

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